FDMASWarrior

This is my daughter Adalyn. She is a fibrous dysplasia McCune Albright warrior. There is a lot entailed with this genetic syndrome. She has chronic pain, endocrine, related medical, and has to have multiple surgeries to repair or strengthen her bones. We recently discovered that the tumors in her left foot have expanded greatly. we have an opportunity to take a trip to NIH for a historical case study. That would also put in the works of trying a new clinical trial medication. This medication has been known to reduce pain as well as reduce the size of these tumors. It is a long trip it would in Maryland for a week each visit this is an ongoing treatment. I am looking to ask for help for funding so that we can make the trip needed to join the historical case. Study and start this new treatment. Sharing is caring. Anything can help. Thank you in advance.