We are a grassroots movement dedicated to raising funds and awareness for Primary Ciliary Dyskinesia, a rare lung disease which affects the bodies tiny, hairlike structures (cilia) that line the airways. It affects approximately 1 in every 10,000 to 30,000 people. In our case it affects our daughter Haylee, the name sake of our foundation.
Cilia cells move together in wavelike motions. They carry mucus from the lungs toward the mouth to be coughed or sneezed out of the body. The mucus contains inhaled dust, bacteria, and other small particles.
Celia cells in PCD patients have little to no movement, this prevents them from moving the mucus out of the airways. This can cause mucus to build up and lead to breathing problems and infections. PCD affects mainly the sinuses, ears, and lungs
Currently, there is no treatment to fix the cilia or cure PCD, but an early diagnosis can allow a person to treat sinus and lung infections and take other steps needed such as daily respiratory treatments to keep the airway and lungs as healthy as possible. This can also help prevent or delay lung damage.
Many people who have PCD generally live an active life and have a normal life span. This goes hand and hand with doctors visits, treatments, medical equipment, and many other things that make life just a tad harder for them.
Our goal is to raise funds that can be donated towards research centers as well as any #PCDWarriors in need of additional support in the form of medications, medical bills, and equipment.
Thank you in advance for your help!
Love,
The Swansons
