Hello, my name is Tammie, and I’m reaching out for help for my daughter, Millie.
Millie is a strong, beautiful little girl who has been fighting an incredibly difficult battle since infancy. She began having seizures at just 8 months old due to a very rare genetic condition called POBINDS syndrome—a condition so rare that she is considered 1 in 100 in medical history.
Since January 2025, Millie has faced life-threatening challenges, including five episodes of Status Epilepticus, where her life was nearly taken from her. Despite everything, she continues to fight with strength every single day.
In addition to epilepsy, Millie also has a heart condition known as an Atrial Septal Defect, which will require surgical repair in the coming years. We are also currently undergoing genetic testing to determine whether she may have cardiomyopathy, but we are still awaiting answers.
Millie is also being evaluated for autism. She has developmental delays, didn’t walk until age 2, and is currently nonverbal. She sees around 12 specialists and doctors, and we frequently travel in and out of state to get her the care she needs.
This journey has been emotionally and financially overwhelming for our family. We are currently struggling with reliable transportation, which makes getting Millie to her many appointments very difficult. Our hope with this fundraiser is to:
Repair our current vehicle or purchase a reliable one
Help cover travel expenses for medical visits
Assist with mounting medical bills
Provide supportive devices and tools that could improve Millie’s quality of life
Any donation, no matter how small, would mean the world to us. If you’re unable to give, prayers and sharing our story are just as appreciated.
Thank you for taking the time to read about Millie’s journey and for any support you can offer.
God bless you
