Our Journey With ITP – Please Help
On January 1st, 2025, our lives were turned upside down. My wife suddenly developed blood blisters in her mouth. Since it was a holiday, we went to urgent care, and they told us to get to the emergency room right away.
At the hospital, they ran some tests and found her platelet count was just 1. Normal is between 150 and 400. She was diagnosed with ITP, a rare autoimmune condition where the body attacks its own platelets. She was admitted and treated with IVIG and steroids. After a few days in the hospital, her levels improved enough for her to come home.
That same night, she collapsed at home. She had an episode of convulsive syncope and went into AFib. We called 911, and she was taken back to the hospital. While there, she had another episode and was rushed to the resuscitation room. She then spent several days in intensive care so they could monitor her closely.
Since then, it has been a long and difficult journey. Her platelet levels dropped again after coming home. She started a medication called Nplate, which she now needs once or twice a month. It’s very expensive, and she also has to go to frequent doctor appointments and lab visits.
What many people don’t know is that ITP can affect anyone, at any time. In many cases, it develops suddenly after something as common as a virus. That’s what happened to my wife. One day she felt fine, and the next we were in the ER facing a life-threatening condition we had never even heard of.
Because her immune system is so sensitive right now, it’s too risky for her to go back to work. She was a daycare teacher, a job she loved, but she’s been out of work since January. With no income and growing medical bills, we’re falling behind quickly.
We’re asking for help to cover:
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Nplate injections and medications
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Hospital and ICU bills
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Ongoing lab work and follow-up care
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Basic living expenses while she recovers
Anything helps. Even sharing this means a lot to us. Thank you for taking the time to read our story and for supporting us during such a hard time.
