Allesandra Beavers is a 10 year old child with multiple disabilities. She was born with a disease called sodium channel myotonia which is treated with medication. At age 3, she was diagnosed with autism and soon after that a tumor on her kidneys was discovered called Wilms tumor, which is cancer of the kidney. The tumor ruptured, causing her to lose her kidney. She had three surgeries, and 15 months of chemotherapy and currently is in remission.
At age 7 Alle began a battle with epilepsy. She has been in and out of the hospital with many seizures over the past three years. In January 2024 she was give the diagnosis of Lennoxgastaut Syndrome which includes uncontrolled seizures. A new medication used to treat that condition called Epodiolex was prescribed for Alle. She responded very well,seizure free for 6 months.
On August 11th Alle had been recovering from a viral infection and a fever spiked which ultimately led to a series of repetitive seizures. EMT was called to transport her to the hospital. When they were taking her from our home she had a cardiac arrest outside our house. They were able to establish her vitals, safe enough to transport her. In route to the hospital she had a second cardiac arrest. She was deprived of oxygen for approximately 40 minutes. Her chance for survival was very grim. Once again Alle is beating all the expectations of the doctors and recovering from this tragic incident. She has been in the hospital for three weeks and in a couple weeks will be discharged for a rehab program at her home.
In consultation with her doctors, social workers, therapist’s and educational staff we have all agreed that a service companion dog could be life-saving for Alle. The dog would benefit the care of her physical disabilities, mental health and safety.
ServicesDogforAlle
Fundraising for
Ryan Rothfuss
Fundraising forRyan Rothfuss
Ryan Rothfuss
Farmington NY
$15,032of $15,000 goal
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Fundraiser Updates (3)
October 10, 2024
Ryan Rothfuss
On October 2nd we took Alle to visit a service dog training program called Amazing Tails in Pennsylvania. We had an interview and a visit the Directors and some of the dogs. We learned a lot about service dogs and were pretty excited when we left. The next day we heard Alle had been selected to receive a service dog and so the process has begun. It could take up to 2 years to train Alle’s dog in the specific skills needed to support her. It is because of the generous donations we’ve received thus far that we are able to fund the initiation of this training program. The remainder of the payment will be due when training is completed so we have more time to continue the necessary fundraising . Thank you for all your support. We are truly grateful.
September 17, 2024
Ryan Rothfuss
A service dog for Alle will be in the price range of $15,000-$30,000. It depends on the organization that will provide us a dog for Alle. The expense of the dog will cover the dog, the handler cost, specialized training for the dog, veterinary bills, food, shelter, toys. It will also cover costs of transportation for Alle and her family to go to the training facilities for training sessions and to retrieve the dog upon completion of training.
September 16, 2024
Ryan Rothfuss
Alle is now at home and doing well. She is planning on going back to school soon and home rehab is done and she ended up needed very little. To all of her family that is a miracle. I have been home with her provided everything she needs in the way of care with everyday needs.
Anonymous
$100 • Recent donation
Peter Van Echaute
$3,777 • Top donation
Mindy Eveland
$50 • First donation
Organizer
Ryan Rothfuss is the organizer of this fundraiser
Ryan Rothfuss
Farmington NY
Fundraising for
Ryan Rothfuss
Fundraising forRyan Rothfuss
Donation protected
👍 0% fee
Allesandra Beavers is a 10 year old child with multiple disabilities. She was born with a disease called sodium channel myotonia which is treated with medication. At age 3, she was diagnosed with autism and soon after that a tumor on her kidneys was discovered called Wilms tumor, which is cancer of the kidney. The tumor ruptured, causing her to lose her kidney. She had three surgeries, and 15 months of chemotherapy and currently is in remission.
At age 7 Alle began a battle with epilepsy. She has been in and out of the hospital with many seizures over the past three years. In January 2024 she was give the diagnosis of Lennoxgastaut Syndrome which includes uncontrolled seizures. A new medication used to treat that condition called Epodiolex was prescribed for Alle. She responded very well,seizure free for 6 months.
On August 11th Alle had been recovering from a viral infection and a fever spiked which ultimately led to a series of repetitive seizures. EMT was called to transport her to the hospital. When they were taking her from our home she had a cardiac arrest outside our house. They were able to establish her vitals, safe enough to transport her. In route to the hospital she had a second cardiac arrest. She was deprived of oxygen for approximately 40 minutes. Her chance for survival was very grim. Once again Alle is beating all the expectations of the doctors and recovering from this tragic incident. She has been in the hospital for three weeks and in a couple weeks will be discharged for a rehab program at her home.
In consultation with her doctors, social workers, therapist’s and educational staff we have all agreed that a service companion dog could be life-saving for Alle. The dog would benefit the care of her physical disabilities, mental health and safety.
Fundraiser Updates (3)
October 10, 2024
Ryan Rothfuss
On October 2nd we took Alle to visit a service dog training program called Amazing Tails in Pennsylvania. We had an interview and a visit the Directors and some of the dogs. We learned a lot about service dogs and were pretty excited when we left. The next day we heard Alle had been selected to receive a service dog and so the process has begun. It could take up to 2 years to train Alle’s dog in the specific skills needed to support her. It is because of the generous donations we’ve received thus far that we are able to fund the initiation of this training program. The remainder of the payment will be due when training is completed so we have more time to continue the necessary fundraising . Thank you for all your support. We are truly grateful.
September 17, 2024
Ryan Rothfuss
A service dog for Alle will be in the price range of $15,000-$30,000. It depends on the organization that will provide us a dog for Alle. The expense of the dog will cover the dog, the handler cost, specialized training for the dog, veterinary bills, food, shelter, toys. It will also cover costs of transportation for Alle and her family to go to the training facilities for training sessions and to retrieve the dog upon completion of training.
September 16, 2024
Ryan Rothfuss
Alle is now at home and doing well. She is planning on going back to school soon and home rehab is done and she ended up needed very little. To all of her family that is a miracle. I have been home with her provided everything she needs in the way of care with everyday needs.
Organizer
Ryan Rothfuss is the organizer of this fundraiser
