while recovering from her bone marrow transplant, Maddie’s family found out on May 8, 2024 that her cancer had returned. This was devastating news. Maddie’s care team has been searching far and wide for a plan of action. They have consulted numerous experts in the field and even reached out across the globe to different clinicians.
Truthfully, the prognosis is not good. the team has talked to their family about measures to extend Maddie’s time and quality of time with their family so she can stay out of the hospital as much as possible. They will be working to try to force graft versus host disease and hopes that it will attack the cancer so that they can get her into remission to be able to do a second bone marrow transplant. unfortunately, they would not be able to do as aggressive of a treatment this time. The team does not believe all hope is completely lost, but they do want to be realistic and make sure that whatever time is left with Maddie. She can spend it the way she wants.
That being said, her family is working on an across country trip to visit as many national parks as possible, which has always been a dream of their family as well as take her to Disney as they promised her back in the ICU. They will be traveling from Cleveland all the way to California and back in the near future.
Donations received on this page will go towards helping them cover those expenses as well as any other expenses that come up from medical bills as well as daily living expenses for time off work while traveling.
We feel very grateful for the pouring out of support that has come to us in so many forms as our family grieves situation we now face. we thank you for your prayers, the resources shared, as well as every other little thing that has been done to make our families life easier during this unthinkable and unfathomable time.
We hope to document our trip with Maddie and share it with the world so that they can see the light they have helped her to shine . God bless everyone and hold your loved ones tight - no day is promised
The family truly appreciates everyone’s generosity, love and kindness. All the donations that you are so generously giving will help Rachael and Ron to take care of basic needs and bills during this time.
Please know the family expresses their extreme gratitude, although they have not been able to reach out to everyone who has donated individually, but they are beyond touched and grateful.
