*MyLeukodystrophyWarrior

Hi, My name is Misty and I'm starting this fundraiser to help my 4 yr old son Jameson wyatt. The day after my sons 4th birthday he had congenital heart failure a d 4 strokes. We were in Vanderbilt children's hospital for over the last 70 days with my baby and during that time he suffered with 68 hours of seizures twice they were so bad that the Drs completely shut his brain down he was in two medically induced comas and also went thru Plex dialysis treatments and ivig back to back during the second coma I was told that if he was lucky enough to get out of the coma I would be very lucky if my son at 4 yrs of age would ever be able to walk again or remember who me or his dad or any of his siblings were...They we're Almost giving up on my son and I knew that he was already on a ventilator for 39 days that he was gonna have to be able to wake up and breath on his own. I had nothing but faith even days after brain surgery and a brain biopsy they did an MRI and my son's entire lil head was highly inflamed and covered in this stuff called "white matter" so at first they diagnosed him with ADEM similar to childhood ms but after the Plex treatments and his body going back to normal he woke up Christmas day and was wide awake and ready to stay with us this time after multiple different comas and weeks of rest he was back with us finally in the next two days the vent was about to come out after over 40 days this baby was eating speaking but wasn't able to sit up on his own or have anything to drink bc he kept aspirating everything they tried to give him Luckily my baby had a very good neurologist bc after months they thought they had everything figured out my son started seizing again it wasn't even 10 full days and they decided to do another MRI and come to find out they knew he already had 65% brain damage from the inflammation that had finally went down and the spots and hemmorhaging areas that were trying to heal themselves in the back of his head that caused the massive strokes on this baby that they thought healed up was ok but my babies entire frontal lobe was being attacked now and thats when my son was diagnosed with a very deadly and very rare genetic disease and it's called leukodystrophy eventually my baby will lose all his motor skills, vision, and he can go blind, it can effect his entire brain and central nervous system until he goes numb, paralyzed, and eventually death. He has a rare genetics and autoimmune condition and we have been struggling with everything bills bc we have been living in the hospital now on and off since last November 2021 and the trips where he has so many appointments are killin' I'm his mom I deal with all his meds, all his appts, and make sure he is an hour drive away every single day he has occupational and physical therapy where he lost his full ability to walk and is just now strong enough to try to learn. All I know is that with him and his health and traveling and taking care of also my bills and his three sisters that are 11, 8, and 6 I'm seriously needing all the help we can get I know that it's embarrassing to have to ask but I'm not asking for me I'm asking for my son so that we can get my baby to Philadelphia children's hospital to be able to do the trial test on leukodystrophy as soon as it starts here in a few months but I live in Tennessee and I'm gonna have to finance the entire trip our travel l, where we will be able to stay bc the hospital won't support me at all while he's doing these trials, and our food for weeks to months depending on how long and I need to pray and keep positive thoughts that I can raise enough for this great cause my son deserves to find a cure... I don't wanna watch my baby suffer from this disease and if this trial can help him and give him a chance in life longer then I'm going to keep asking for as much help and I'm gonna be continuously spreading awareness for Leukodystrophy while I'm trying to get my son help. Just everyone please keep him in your prayers 🙏❤️ he is maybe the Sweetest baby in this world help me get enough money to get my baby the help he needs please everyone and thank you so much.....God bless 🙏❤️