UPDATE: I truly do not have the words to express how thankful I am for the donations. Knowing that there is a community behind me means everything. Thank you thank you thank you. We are really far along in the process of getting the car that will suit my needs and allow me to work.
If you feel compelled and have something to give, thank you! if not, pass it around and thanks for reading!
Focusing our attention on spinal cord injury, I have one of those! Many people live with them. Apart from our complete divorce of privacy and spontaneity, people living with disabilities hold a far-reaching perspective.
let's keep going on that…
Do you remember the last time you hated a job? Maybe a boss or peer really got under your skin? You almost ”lost your cool” so to speak. Now imagine a painful job you despise. A job that harbors muted rage and desolation. This is paralysis— A job you not only didn’t earn or ask for, but you’ll die if you quit and you’re not even paid for it. Matter of fact, you pay an inconceivable amount of money to large unknown entities and personal intruders to have this job. Living with paralysis requires, amongst many other things, an alienonic level of patience and self-awareness, ideal for the workforce. So truly, I'm trying to get a second job. Can you help? Gimme those thoughts and prayers, maybe they'll come up marigolds! 🌼
This a struggle of great magnitude that emphasizes the fundamental characteristics of what it truly means to be a human being in the first place. Why are we still here? How have we made it? Do we deserve this? Human beings have the ability to adapt and reconstruct our environment in order to suit a plethora of needs that are in constant flux and deviation.
I want to work! I want to feel that I belong in any room I'm in, I suppose that's what I'm trying to do. Belong. I know many others in my position feel the same so I am establishing some effort to lead by example because of course, it is possible.
i've come along way, After waking from comatose I was cognitively impaired, on a ventilator for breathing, and had a feeding tube from my nose to my stomach. I broke 38 bones. I spent every holiday-- including my birthday moving from hospital to hospital for the rest of the year and into 2020, and then even more cruel isolation through Covid. Freshly off a ventilator, terrified of all things. Now, it's October and when I am not managing caregivers, chronic pain, or our indisputably defective health system, I'm working to re-join society-- worshiping the land, my neighbors and my new body because well hey I'm still here, you did good little body! Now little brain, ask for help!
i'll be seeing you, hopefully soon XO
