Fundraiser for Coalition Duchenne/ Duchenne Without Borders.
Hello everyone,
In just a few weeks, I will once again be climbing Mt. Kinabalu in Sabah, Malaysia, as part of our 14th annual Expedition Mt. Kinabalu to raise awareness for Duchenne muscular dystrophy.
More than 27 years ago, my son, Dusty, was diagnosed with Duchenne. Like so many families, we were suddenly faced with a future filled with uncertainty. Fourteen years ago, I decided to climb Mt. Kinabalu to raise awareness, create hope, and ensure that no family facing Duchenne would feel alone.
What began as one mother's determination to help her son has grown into a global movement, with over 700 climbers from 25 countries joining us over the years to raise awareness, support families, and help advance research for Duchenne.
This year, we will once again climb with an incredible team of international participants and capture footage for a new documentary film. At the heart of the film is Dusty, who continues to pursue what he loves most. He is an inventor with a patent pending, a creator, and a powerful reminder that people living with Duchenne have so much to contribute when given the opportunity and support.
This year's climb has a very special purpose. We are raising funds to support the second Duchenne-specific family workshop in Malaysia, in collaboration with the Sabah Women and Children's Hospital. Families will travel from remote areas of Sabah to access specialist care, education, and support, many for the very first time.
Funds raised will help cover travel and accommodation costs for families attending the workshop, support the provision of wheelchairs and other essential equipment for boys living with Duchenne in Sabah, and help us continue our work in research, advocacy, and awareness.
Our hope is simple: that every person living with Duchenne has the opportunity to continue doing what they love most, and that no family faces this journey alone.
If you would like to support our efforts, every donation, no matter the amount, will help bring care, connection, hope, and opportunity to families living with Duchenne.
Thank you for being part of this journey and for helping us bring hope, support, research, and connection to families living with Duchenne.
With gratitude,
Cath Jayasuriya
Founder, Coalition Duchenne/Duchenne Without Borders
