My son has diagnosis of dejerine-sottas syndrome ( CMT type 3), severe scoliosis (just had first spinal surgery and will have another in a couple years), and chromosome 9p deletion. He has been in a wheelchair since he was 2, we are in the process of getting a power wheelchair for him. He is getting too big for me to carry with me having back issues myself.
Thank you for taking time to read our story, we appreciate any help we can get from the bottom of our hearts




