Update at the bottom:
Hi, I am a single, recently turned 41 y/o mom of two adult children. Since August of 2021 I have been fighting for social security disability benefits, as you can see in the photo my hands swell beyond measure, after utilizing them to do even household chores. I suffer from fibromyalgia, chronic Lyme disease arthritis, among other chronic illnesses. Luckily I have been able to live with my parents during this time, however my stepdad has recently had to have spinal surgery; and is now on disability, my mom works 35-40 hours a week bar tending at a local sportsman club making less than $10/hour. I unfortunately have depleted my savings, & recently lost my car due to the motor mount snapping.
my primary care physician, my therapist and the vocational expert that was present during my SSDI hearing- all state that I am no longer employable due to my progressively worsening health conditions.
I have since the beginning of May, been working with a disability advocate for my SSD & SSI case
I struggle with opioid use disorder. I fought really hard to get put back on prescription pain meds because I do not want to use illicit drugs. My primary put me on 10mg up to 4x per day, 28 pills per week. She retired. My new primary without warning prescribed 30 10mg oxycodone for 30 days… I went from 40mg/day to 10mg/day, literally overnight. I relapsed, for about a week. I admitted myself into a detox program and completed it. I then got home and immediately. Met with a SUD doctor, who prescribed 16mg buprenorphine per day. I tried to dose with about 4mg every 6 hours. For 48 hours I felt like I’d been run over by a Mack Truck, in a crazy amount of pain and extremely nauseous but none of my anti-emetic meds were working or even helping… Doc said they are referring me to a pain management specialist…. And the cycle repeats itself…. Idk how this system is even remotely safe, for anyone but the people that get paid by insurance companies to keep passing me around to different specialists like I’m a joint in a hippie circle.
I have to get caught up on bills and I’m in need of bras, socks, underwear, shorts, jeans, shavers, etc.
I have completely given up any kind of “unnecessary” items. I cut out coffee, and soda from my diet i cut my own hair, I paint my own nails, I haven’t gone to a restaurant since February- when I went with my maternal parents and my Aunt to lunch- before that- I hadn’t been out to eat since 2022… I am struggling so much right now- and I hate asking for help, but I am at a complete loss lately. If you can, please share or donate
