At just 9 years old, Lincoln has already had to relearn how to walk—twice. Now, he needs a lifesaving liver transplant to give him the childhood he deserves; and we need your support to help us keep everything moving forward financially with his care and things at home.
Our son, Lincoln Istre, was diagnosed at only one week old with arginase deficiency, an extremely rare genetic metabolic disorder identified through newborn screening. There is no medication that can cure his condition. His protein-restricted diet, special formula, and daily medications have helped manage it, but they cannot stop the disease from progressing.
Two years ago, Lincoln became critically ill and slipped into a coma. Afterward, his health began declining rapidly. At first, he became sick every few months. Then it was every other week. Now, Lincoln is facing end-stage liver disease.
The hardest part has been watching our little boy come so close to losing his life. We have watched him relearn how to walk twice and struggle to regain basic abilities that most of us take for granted—like holding a fork and walking. He does not understand why his body keeps making him sick, and as his family, it is heartbreaking to feel unable to take that pain away.
A liver transplant could change everything for Lincoln. It could correct the metabolic disorder causing his illness and give him the chance to eat regular foods, regain cognitive abilities, and live without the dangerous hyperammonemia episodes that have taken so much from him. It could allow him to simply be a child again.
We have hope. We believe there is someone out there who may be willing to help save Lincoln’s life—but we need your help.
Please share Lincoln’s story with your family, friends, coworkers, churches, and community. One share could reach the person who is meant to become his living liver donor. Your donations will support us as we live in a different city away from daddy for 3 months after the surgery. They will help with bills, after care, medication, food-he's finally going to get to eat what everyone else takes for granted (expect videos!). We don't know about all of the expenses and the amount is just an estimate, updates will be given regularly to show how Lincoln is progressing every step of the way.
Please help us get Lincoln to the healthy, happy future waiting for him.
#Liver4Lincoln #PleaseShare #ChampionforLife
