1 In A Million: This Is Steven's Story

1 in a million, this is Steven's story. Our beloved Steven was born a bit premature and after a year long battle at just 13 months old he was diagnosed with sphrintzen goldberg syndrome. With only 75 documented cases worldwide wide this disease is 1 in 1,000,000. Getting through the red tape of insurance and waivers Steven has been accepted to see a top specialist at Boston General Mass Hospital. We are actively trying to raise $3,000 on top of our family savings with all portions to be allocated to airfare from our home in Arkansas to Boston, MA, lodging expenses while in Boston, medical bills that our family can not cover even after insurance, and towards pediatric leg braces. Steven is joyful, and full of life. He is the youngest of 4 brothers, and he brings laughter and joy to all he comes in contact with. As long as there is breath in us, we will not stop fighting for our son.