Ezra

Ezra Gault Kiser. Where to Begin. It's so much. Lil E, Bubs, Bubba, and a light to many souls. I was one of the fortunate ones to cross his path. Ezra was born into this World to walk a very different and arduous path. He was medically fragile with a seizure disorder. It took an entire village to walk that road with Ezra's Mom Marisa as the guide. Ezra and all medically children are light. They shine an inescapable light to the darkest corners the tiniest parts of one's soul. You do not get to escape anything about yourself if you are the guide. The light never stops, you can't look away it just that bright and searing. A Mother will do anything to protect that light no matter how searing. The Leader knows not exactly where their headed. But they lead like Marisa did anyways. Marisa and Ezra's journey took them many places. To some of the Biggest and Best Teaching Institutions across the Nation. The prognosis was poor and the seizure journey is so very painful and often not compatible with Life. It's impossible to put into words the horror of watching a small child seize to the point of broken bones over and over again. Lights like Ezra aren't usually with Us long. Marisa Her oldest son Noah and Ezra made a journey so many years ago almost a decade now to Colorado. There was ancetodal hope emerging with cannabis CBD controlling seizure disorders. Marisa with 2 children in tow not exactly knowing what the future holds, the how's and details not even totally realized made that scary leap towards Hope. I met Marisa here as 1 of Ezra's Homecare Nurses. Children like Ezra need 24 hour Nursing care. Parents and Siblings Like Noah Odin and Selah learn nursing skills in order to have children like Ezra at Home.  It takes a village. Cannabis gave Ezra relief from endstage dystonia. The absolute most horrid thing I ever witnessed in all my nursing career. Cannabis gave Ezra quite a few more years with his family. I witnessed this unfold from the time he was discharged from Children's PICU to Hospice at Home. Nothing stopped the dystonia or provided a medically induced coma. I mean nothing no dose of the most powerful drugs would stop the bone breaking dystonia. Until the Pediatric Neurologist told Marisa give him 280mg of activated THC and do that 3 times a day. It worked and off to Hospice at Home. Not too long before this event I believe is when little brother Odin was born. Well the Cannabis Worked Ezra was thriving Marisa had changed him over to a whole food diet, she slowly unbent his little body. Ezra was locked in position bent backwards like a C with the crown of his head almost touching his butt when Cannabis spared him by knocking him out. Oxygen suctioning repositioning J tube feedings continued and Ezra was unconscious but thriving. Marisa reduced the THC slowly and 3 months later Lil E was awake in a straight position looking around. The most amazing thing I ever witnessed in all the big teaching institutions I had worked.  That's how the Light of these children shine. Shortly Lil Sis Selah was born. Boy Marisa had her hands full. But her hands were filled with so much Love too. As Cannabis Laws changed Marisa and Noah and Ezra and Odin and Selah were all able to return to family in South Carolina. The original cannabis kids and their families were essentially marijuana refugees in Colorado. But that has all changed and is changing. That's how big and bright Ezra's light was. After about 10 1/2 years just the other day Ezra's light passed on. I was honored to attend his funeral and catch-up with his family. But now Marisa needs a little Village Time. Time to Grieve, time to help Noah Odin and Selah grieve. For 101/2 years Marisa has been Ezra's caretaker after leaving her career as a special education teacher. There is no resume no work history and the small amount of income from Ezra's SSI is no more. I spoke with Marisa's Sister Neeley and $6,000 seemed to be the needed monetary amount to get Marisa Noah Odin and Selah over this difficult hurdle. I've also walked the pathway of a medically fragile child and it takes a village. This family is large and loving. They taught me so very much. So the least I can do is make a heartfelt plea and invite anyone who reads this to join the Village of giving and helping. If you can't give please share. In The Village We All Just Try To Do What We Can To Help Each Other. Every tiny bit Lights The Pathway of Hope and Love. I Love You Marisa Noah Ezra Odin and Selah. Be Blessed. Ezra's Light Is With Us. Thank You who've read and those who haven't may you all be blessed too.