My name is Jen and I have a very rare autoimmune disease . It affects my muscles, muscle fibers and nerves. I started treatment Dec.24 2025 and took over a year to diagnose. I work for a college and
A personal Trainer. This disease took my independence where I wasn’t able to walk without a walker then a cane and forced to stop training and cannot give college tours. My jobs are not remote. Treatment was starting to work and I was walking without a cane….. until the last 2 Weeks. My
Body is rejecting the old Treatment and now a new treatment will cost me 1600 out of pocket per month. This took a toll On my
Family Since this first month would be hard To Start. I have 3 kids that depend on me and a finance working 110 plus hours every 2 weeks. We just need help For the first treatment . I have Antisynthetase syndrome is a rare autoimmune disease defined by specific autoantibodies targeting aminoacyl-tRNA synthetase enzymes. only 1 In 100,000 Have this
