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*CrossingForCF2023

Beveled Asterisk
CrossingForCF2023
CrossingForCF2023

Fundraising for

Ashley Williams

Fundraising forAshley Williams
Ashley Williams

Ashley Williams

Space Coast, Florida

$1,165of $3,500 goal
14
Donors
9
Comments
8Share Arrow
Shares
Donation protected
👍 0% fee

We prepped for our baby like any other family. Set up a nursery, packed our hospital bag, made our plans. Everything went beautifully and we welcomed our perfect baby girl Aurora on June 1, 2020. Little did we know that within 24 hours our worlds would be turned upside down.

The nurse came in to take Aurora for her newborn screening. I think a quick heel prick, they'll have her right back to me. I'm on video chat with her dad and big brother so big brother could see her before she came home. But the nurse didn't bring her back. She came in empty handed and said something wasn't right so they were sending her to NICU to get checked out. The next 2.5 weeks became a blur. 

Our NICU check turned into a transfer to our local children's hospital in Orlando and surgery the following morning. We went that whole week wondering what happened to get us here. The following Monday we got our answer with her newborn screening results. Cystic Fibrosis. What she experienced was a muconium ileus or very simply put a bowel obstruction. This surgery left her with an ostomy for 4 months. Oct of 2020, Aurora has her second surgery to reverse the ostomy and has been unstoppable since!

Cystic Fibrosis is a rare genetic disease that is chronic, progressive and terminal. It affects about 70,000 people worldwide (30,000 in the US). Medications and therapies have come a long way and the average life expectancy for a CF patient was recently upped to 50! BUT! We still need a cure!!!

With Aurora's diagnosis, I feel it's my duty for her and for the future generations that will face this disease to get involved in a big way. Can you think of a bigger way than crossing the ocean for your kid?! (Not the whole ocean, but the Gulf Stream at least)

Crossing for Cystic Fibrosis is an endurance event starting in Bimini, Bahamas and ending in Lake Worth Beach, Florida. That's 80 miles of open ocean! I'm doing it, even if I have to hide in someone's boat and stow-away, I'm going to Bimini for Crossing in 2023 and I'd prefer to do it legally and in a way that makes an impact for my daughter and the CF community. So I'm asking for your help to get us to Bimini for #x4cf2023

Fundraiser Updates (5)

November 03, 2022
Ashley Williams
Ashley Williams

We have come to that time! I didn't think it would happen so quickly but I am so thankful and blessed! 

I am officially changing gears from crowding funding expenses for the event to fundraising for the event itself! 

I am still doing personal sponsors so if you have made a donation of $50 or more, your name is being added to the board! If anyone going forward makes a donation of that amount or more, their name goes on the board too! 

Speaking of board, I am so very thankful to Piper's Angels Foundation for extending to me their Forever Stoke Scholarship! They placed an order for a custom 14' SUP racer for the event! I can't wait to get the beauty that will be my vessel for the Crossing. It's going to be truly magical to have a piece of art to cross with! 

So all that being said now, you can follow us on our classy page for the Official X4CF2023 Fundraiser

The only thing we have left to fund and figure out is getting to and living on the island for several days before we launch for the event. If you'd like to make a contribution to that in any manner, let me know and we can talk more how you can help! 

October 02, 2022
Ashley Williams
Ashley Williams

Good morning! Out fundraiser goal had been DROPPED! With the receipt of the Forever Stoke Scholarship from Piper's Angels, we are get a brand new, custom board for Crossing! The event board was a huge chunk of the fundraising goal. Our adjusted amount includes registration, travel and lodging expenses, and the $2000 fundraising minimum for the event. 

So far what has been raised has been applied to the registration cost (which was a touch over $400), passport to travel ($165) and now is being applied towards the roof rack system for my car to make sure I can transport this lovely new equipment and make sure it stays in tip top shape! 

 

You all are amazing! Let's keep the love going. Share our story with all your friends and family. Word of mouth feeds our fundraiser more than you realize! 

September 30, 2022
Ashley Williams
Ashley Williams

Gooooooooooood morning! We made it through Hurricane Ian with no damages to report. We're very thankful that everything happened as it did because it could have been much, much worse. We're still praying for Florida as we clean up from the aftermath and discover the extent of the destruction across the state.

On to some better news! I was recently contacted by Piper's Angels Foundation to confirm my Crossing registration details. During our talk, I was presented with an opportunity to apply for what's called the Forever Stoke Scholarship. Everything has happened so quickly and it still feels surreal. 

I've worked now with Casey Keirnan to pick my customizations and the order was placed on Wed 9/28. Our #AuroraStrong beauty should be ready in 3-4 weeks for me to pick up and start training on! 

That also means that our crowdfunding efforts are gonna get switched over to our Crossing fundraiser VERY SOON! Thank you so much for all you have helped me to accomplish already! I am so grateful, thankful and blessed 💜💜💜💜💜💜

September 23, 2022
Ashley Williams
Ashley Williams

Update on our Journey to Crossing for CF 2023. 

 

I got a call 2 days ago from Tatiana Tims with Piper's Angels Foundation. She called and was confirming my registration details for Crossing. During our conversation she asks me how I found out about Crossing and my motivation for doing it. So I told her our story. I just want to make an impact for Aurora and all our salty friends. I want to be part of something bigger than myself. Plus the thrill of being at the landing this past June, I want to experience it from the other side. 

 

I also tell her how I'm crowdfunding this expedition and what progress we've made so far (about 17% of our total goal of $5500). Now, Pipers Angels has scholarships and grants for a number of different things, including assistance for Crossing expenses. I am aware of these programs and had looked into them, but they only apply to people with CF, not care givers. So I never applied. 

 

She tells me they are having a meeting later that afternoon and are going to discuss extending their Forever Stoke Scholarship to care givers. I got a text message yesterday stating they were in agreement and are allowing me to apply for the Forever Stoke Scholarship! 

 

This can potentially provide assistance with Crossing expenses like travel and lodging as well as help with equipment, like a board and roof rack for the car! This means that with this assistance, I won't have to fully crowdfund this expedition! 

 

We'll be able to turn our fundraising efforts over to the Crossing! That means that every dollar raised will go towards more than just getting me to Bimini to participate. Your efforts are going to go towards continuing to provide these kind of assistance programs to others. It will go towards funding emergency financial programs for CF families. It will make such a bigger impact for our CF community! 

August 12, 2022
Ashley Williams
Ashley Williams

Good day everyone! It's official, we're having a Zumbathon!

Click that link for the event details. its a suggested $10 donation for the event. 

A $50 donation earns your name being added to our event board as a personal sponsor to travel the Crossing with me. 

I look forward to seeing everyone get out and help dance us to Bimini!

Laurie Pawlowicz Kenny
Jennifer Jontz
Tim Wright
Lynn Geddie
Lori Cope
and others donated recently
Anonymous

Anonymous

$200 • Recent donation

Zumbathon!

Zumbathon!

$380 • Top donation

Janet Jensen

Janet Jensen

$50 • First donation

Organizer

Ashley Williams

Ashley Williams is the organizer of this fundraiser

Beveled Asterisk
CrossingForCF2023
CrossingForCF2023
Ashley Williams

Ashley Williams

Space Coast, Florida

Fundraising for

Ashley Williams

Fundraising forAshley Williams
Donation protected
👍 0% fee

We prepped for our baby like any other family. Set up a nursery, packed our hospital bag, made our plans. Everything went beautifully and we welcomed our perfect baby girl Aurora on June 1, 2020. Little did we know that within 24 hours our worlds would be turned upside down.

The nurse came in to take Aurora for her newborn screening. I think a quick heel prick, they'll have her right back to me. I'm on video chat with her dad and big brother so big brother could see her before she came home. But the nurse didn't bring her back. She came in empty handed and said something wasn't right so they were sending her to NICU to get checked out. The next 2.5 weeks became a blur. 

Our NICU check turned into a transfer to our local children's hospital in Orlando and surgery the following morning. We went that whole week wondering what happened to get us here. The following Monday we got our answer with her newborn screening results. Cystic Fibrosis. What she experienced was a muconium ileus or very simply put a bowel obstruction. This surgery left her with an ostomy for 4 months. Oct of 2020, Aurora has her second surgery to reverse the ostomy and has been unstoppable since!

Cystic Fibrosis is a rare genetic disease that is chronic, progressive and terminal. It affects about 70,000 people worldwide (30,000 in the US). Medications and therapies have come a long way and the average life expectancy for a CF patient was recently upped to 50! BUT! We still need a cure!!!

With Aurora's diagnosis, I feel it's my duty for her and for the future generations that will face this disease to get involved in a big way. Can you think of a bigger way than crossing the ocean for your kid?! (Not the whole ocean, but the Gulf Stream at least)

Crossing for Cystic Fibrosis is an endurance event starting in Bimini, Bahamas and ending in Lake Worth Beach, Florida. That's 80 miles of open ocean! I'm doing it, even if I have to hide in someone's boat and stow-away, I'm going to Bimini for Crossing in 2023 and I'd prefer to do it legally and in a way that makes an impact for my daughter and the CF community. So I'm asking for your help to get us to Bimini for #x4cf2023

Fundraiser Updates (5)

November 03, 2022
Ashley Williams
Ashley Williams

We have come to that time! I didn't think it would happen so quickly but I am so thankful and blessed! 

I am officially changing gears from crowding funding expenses for the event to fundraising for the event itself! 

I am still doing personal sponsors so if you have made a donation of $50 or more, your name is being added to the board! If anyone going forward makes a donation of that amount or more, their name goes on the board too! 

Speaking of board, I am so very thankful to Piper's Angels Foundation for extending to me their Forever Stoke Scholarship! They placed an order for a custom 14' SUP racer for the event! I can't wait to get the beauty that will be my vessel for the Crossing. It's going to be truly magical to have a piece of art to cross with! 

So all that being said now, you can follow us on our classy page for the Official X4CF2023 Fundraiser

The only thing we have left to fund and figure out is getting to and living on the island for several days before we launch for the event. If you'd like to make a contribution to that in any manner, let me know and we can talk more how you can help! 

October 02, 2022
Ashley Williams
Ashley Williams

Good morning! Out fundraiser goal had been DROPPED! With the receipt of the Forever Stoke Scholarship from Piper's Angels, we are get a brand new, custom board for Crossing! The event board was a huge chunk of the fundraising goal. Our adjusted amount includes registration, travel and lodging expenses, and the $2000 fundraising minimum for the event. 

So far what has been raised has been applied to the registration cost (which was a touch over $400), passport to travel ($165) and now is being applied towards the roof rack system for my car to make sure I can transport this lovely new equipment and make sure it stays in tip top shape! 

 

You all are amazing! Let's keep the love going. Share our story with all your friends and family. Word of mouth feeds our fundraiser more than you realize! 

September 30, 2022
Ashley Williams
Ashley Williams

Gooooooooooood morning! We made it through Hurricane Ian with no damages to report. We're very thankful that everything happened as it did because it could have been much, much worse. We're still praying for Florida as we clean up from the aftermath and discover the extent of the destruction across the state.

On to some better news! I was recently contacted by Piper's Angels Foundation to confirm my Crossing registration details. During our talk, I was presented with an opportunity to apply for what's called the Forever Stoke Scholarship. Everything has happened so quickly and it still feels surreal. 

I've worked now with Casey Keirnan to pick my customizations and the order was placed on Wed 9/28. Our #AuroraStrong beauty should be ready in 3-4 weeks for me to pick up and start training on! 

That also means that our crowdfunding efforts are gonna get switched over to our Crossing fundraiser VERY SOON! Thank you so much for all you have helped me to accomplish already! I am so grateful, thankful and blessed 💜💜💜💜💜💜

September 23, 2022
Ashley Williams
Ashley Williams

Update on our Journey to Crossing for CF 2023. 

 

I got a call 2 days ago from Tatiana Tims with Piper's Angels Foundation. She called and was confirming my registration details for Crossing. During our conversation she asks me how I found out about Crossing and my motivation for doing it. So I told her our story. I just want to make an impact for Aurora and all our salty friends. I want to be part of something bigger than myself. Plus the thrill of being at the landing this past June, I want to experience it from the other side. 

 

I also tell her how I'm crowdfunding this expedition and what progress we've made so far (about 17% of our total goal of $5500). Now, Pipers Angels has scholarships and grants for a number of different things, including assistance for Crossing expenses. I am aware of these programs and had looked into them, but they only apply to people with CF, not care givers. So I never applied. 

 

She tells me they are having a meeting later that afternoon and are going to discuss extending their Forever Stoke Scholarship to care givers. I got a text message yesterday stating they were in agreement and are allowing me to apply for the Forever Stoke Scholarship! 

 

This can potentially provide assistance with Crossing expenses like travel and lodging as well as help with equipment, like a board and roof rack for the car! This means that with this assistance, I won't have to fully crowdfund this expedition! 

 

We'll be able to turn our fundraising efforts over to the Crossing! That means that every dollar raised will go towards more than just getting me to Bimini to participate. Your efforts are going to go towards continuing to provide these kind of assistance programs to others. It will go towards funding emergency financial programs for CF families. It will make such a bigger impact for our CF community! 

August 12, 2022
Ashley Williams
Ashley Williams

Good day everyone! It's official, we're having a Zumbathon!

Click that link for the event details. its a suggested $10 donation for the event. 

A $50 donation earns your name being added to our event board as a personal sponsor to travel the Crossing with me. 

I look forward to seeing everyone get out and help dance us to Bimini!

Organizer

Ashley Williams

Ashley Williams is the organizer of this fundraiser

$1,165of $3,500 goal
14Donors
9Comments
8Share ArrowShares
Laurie Pawlowicz Kenny
Jennifer Jontz
Tim Wright
Lynn Geddie
Lori Cope
and others donated recently
Anonymous

Anonymous

$200 • Recent donation

Zumbathon!

Zumbathon!

$380 • Top donation

Janet Jensen

Janet Jensen

$50 • First donation

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