HelpUsBounceBack

at the end of August 2014 our daughter Sarah was diagnosed with one of the rarest tumors in the world, a Desmoid tumor. It’s when a mutation in the fibroblasts which  protects the structure of your body and help create scar tissue. These tumors become masses of scar tissue and grow tentacles which latch onto major organs. They are extremely resistant to treatments and becoming tumor free is rare . She is STILL 10yrs later battling this monster of a tumor. She’s endured years of multiple chemotherapy drugs , 7 cryo surgeries and one tumor removal only to have it come back . So still at 24 she is a patient at CHOP ( children’s hospital of Philadelphia) medical bills have crushed us and no end in sight. So asking for help to offset some of those bills and lessen the burden on our family . This has affected her life in ways no one should have to know and put a huge financial strain on us as a family. She is a strong fighter and unicorn warrior ( as we call Desmoid patients unicorns due to how rare the disease is ) she missed out on her teen years , while others were going to parties and planning their futures Sarah was enduring chemo and medical procedure after procedure with many more to come in the future . As her mom I will do whatever it takes for my child as all parents do . Last thing I want is for  her to never have to worry about money , medical bills and how we will pay for it all . She’s had enough worry in her 24yrs, more  than anyone should have.Due to the rareness of this tumor funding is low and medical research takes time . The rarest diseases always get the least funding. We need to change that as well by going to the DTRF Foundation where you can learn more and support research so one day no child has to suffer from these monsters. From Sarah and our entire family we THANK YOU.