Hi, my name is Braylen I'm from Beckley WV. My mommy is Danielle and she wants to share with you all my story. He is a 2 year old little boy. He's always happy and loves people, he adores his older sister Aubrey and his three brothers Caden, Carson and landon. He absolutely loves motorcycles, cars, spiderman. But you wouldn't think anything is wrong with him, but unfortunately there is. We have been making several trips to and from his regular doctor, his doctor in teas valley, Huntington hospital for MRIs. Braylens pediatrician has been concerned about braylens head since he was a baby, because it was bigger then normal and kept growing. So he sent him to Dr mary paine in teas valley, and that is where we discovered what is wrong. He has a cist behind his left eye and has a chairi malformation. The chairi malformation can make him be delayed in many different things, like walking, his speech etc. He is also doing speech therapy with birth to three to help with his speech. The chairi malformation has caused severe headaches that he gets often, he will also scream and cry because of where he is hurting. It can also affect him in many different ways like his vision as well. They said it can and will more then likely affect him for the rest of his life. We go back to teas valley September 21st because he just had his second MRI done and this appointment they will tell me exactly how there doing his surgery and everything. I just got the call this morning that he just got scheduled for Neuro surgery on October 12th, he goes to Cincinnati Ohio for his brain surgery. We pray that we get the outcome we pray to jesus for that these drs put my baby in their hands of a healing process for a happy playful lil boy in his future. This was unexpected and last minute, I was praying and hoping surgery wasn't needed, but he does and I'm not sure what the cost will be or how long our stay is going to be. Were not sure what expenses we are facing, or what anything is going to cost. Anything at all helps and is greatly appreciated! Thank you and God bless you all! Please keep him in your thoughts and prayers!



