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BlessingMunnalallFamily

BlessingMunnalallFamily

Fundraising for

Caitlin Munnalall

Fundraising forCaitlin Munnalall
Natalie Bruce

Natalie Bruce

Kailua-kona hawaii

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Hi everyone,

Below is an update on Caitlin’s situation. 
let’s share this page around and help bless this family in a tough time. 
I really felt to create this page to encourage this beautiful family.
They have not asked for this, but as we all know expenses do add up and a relief from that will be so wonderful during this trying time. 

Let’s BLESS them! 

 

update here from Gill, 

 Caitlin suddenly fainted the other day at a friends house and through the testing process to find out why, they discovered a large mass that they believe is in her lung, rib and chest wall. We were flown to Honolulu as our island can’t deal with situations like this.  We’re in the midst of many tests and thousands of questions. In an hour Caitlin will be having a needle biopsy under sedation to try to determine what the growth is and to determine a treatment plan and where we go from here. All prayers are deeply appreciated as we navigate through this challenging time! 

Update:

Here’s the update! Thank you so much for your prayers!!!💕 

Update - Friday  - Feb 17th

Written at 12.30pm: 

They came to take Caitlin to surgery an hour early (at 10am) today which was a blessing! Her surgeon came to her room first and spent almost half an hour explaining all of his thought processes. He told us about all the doctors/surgeons/cancer specialists he’s consulted with before making the decision to proceed this way today. He explained exactly what he planned to do, answered questions, and all in all helped us to feel completely confident in his abilities. They will test the tumor mid surgery and if it shows any cancerous cells they will immediately change tack and do the more aggressive surgery that would take out more ribs. Usually if the tumor is cancerous they like to shrink it first before surgery, but he explained that because she’s been bleeding from the tumor, the cancer cells would already be outside the tumor so they would want to just get it out quickly and then proceed with chemo.

2.05pm 

The surgeon came out to say the surgery is all over and it went really well! He’s very happy with how it went. The preliminary test they did for cancer in the middle of the surgery showed no cancer cells. 😀👏🏽👏🏽👏🏽We have to wait about a week before we will know for sure.😬🙁 We’re very thankful the surgery only took 3 hours and not the 4-6 hours they’d estimated!

3.15pm - They called Barney and I both into the recovery room and we stayed with Caitlin for about 10 minutes. They briefly broke the rules for us as there’s supposed to only be one person in the recovery room with her at a time. Now we’re taking turns with her, so Barney’s in with her right now. She’s still very sleepy and slurring her words. She said she feels a little loopy.😂 She’s in quite a bit of pain but they’re giving her pain meds every 10 minutes to manage it. Through it all she’s so incredibly polite and thanking everyone for everything they’re doing for her! 🥰

They only had to take out about a 4 inch (I think it was) piece of her rib, which is better than we expected! The surgeon said that because the blood had been pooling in her chest cavity for so long there was quite a lot of scar tissue and everything was stuck together. The blood clot was essentially squishing her lung, so she should be able to breathe much better now. He had to do a lot of cleaning up and free up her lung before he could even get to the tumor and see exactly where it was. She has about a 10 inch incision and the tumor went a lot deeper into the chest cavity than he was expecting.

Even though he didn’t have to take out a huge chunk of rib, there was a pretty big hole (in the words of the surgeon) so they did some reconstruction with a piece of Gore-tex to add structure and strength.

She has 2 more IV’s in, so 3 altogether and it looks like they poked her once more but were unsuccessful again with a 4th. I think she’s starting to feel a bit like a pin cushion!😬🙁 They we’re prepared with blood in case they needed to do a blood transfusion but we’re very thankful she didn’t need one!

4pm Caitlin was moved back to her room and now at 5.10pm she’s fast asleep. She was in a lot of pain with even the smallest movements so they have her dosed up on morphine right now. Hopefully she’ll sleep the rest of the day/night away and wake up feeling a little better in the morning!

6pm The nurse woke her up to check her vitals and she was sounding a lot less woozy. The nurse showed us the pictures of the tumor after it was removed and it’s crazy to see how big it was! She’s in pain again so they’re giving her more pain meds.

Thank you so much for all of your incredibly encouraging messages! I can usually ‘hold it together’ until I read Caitlin or Barney one of your messages and then I find it a little harder to not tear up. We’re so thankful for the amazing support we have that’s helping us through this journey!

I may not be able to reply personally to you all today as there have been so many encouragements flying in, but please take this as a huge big ‘thank you’ from the bottom of all our hearts!!!💕

Love to you all💕!

Fundraiser Updates (5)

April 05, 2023
Natalie Bruce
Natalie Bruce

Update - Tuesday April 4th

Hi precious friends and family.
We have wonderful news! FINALLY!!! I had a call today from Caitlin’s doctor in Honolulu to say that the tumor is benign! Thank you LORD!!!! 😀👏🏽👏🏽👏🏽🥳
The type of tumor she had is called an osteoblastoma with a secondary aneurysmal bone cyst. Both tumors are very rare, and both are not usually seen in the rib, while only a 3rd of all cases are seen in girls. The treatment is to remove the tumor, so we’re thankful that they went ahead and did that immediately! There is a chance of it recurring if they didn’t remove it all so they’re going to have us go back to Honolulu in a month or two for another MRI, just to make sure they got it all out. If the MRI isn’t clear, then they’ll have us go back again for another CT scan. The surgeon is  pretty confident they did get it all though so we’re not concerned. We’ve been waiting sooo long for the results so it’s a relief to finally have them back. 😀Every week we’ve called the Doctor (often multiple times) and every week they would tell us there were still no results and to call back next week. Today he was very apologetic that we’ve had to wait so long, but apparently there are very few places that can do the specialized tests they wanted done on the tumor so it just takes time.
Last Monday we flew back to Oahu for a follow up appointment with Caitlin’s surgeon. Sadly, he was stuck in surgery so we saw the other surgeon who had assisted with her surgery. He thought her scar was healing really well. He then told us to call back in a month if we hadn’t heard back from them with the biopsy results. We’re VERY thankful that we don’t have to wait yet another month and that the results are finally here!
We’re so thankful to the Lord for his incredible peace throughout this whole crazy journey.  As we’ve had to wait such an incredibly long time for the results, people kept saying to us “ you must be so stressed”,  but honestly we haven’t been at all. God’s peace that passes understanding has been with us every moment of every day and we’ve just been resting in him knowing that he would continue to be our strength and peace whether it turned out to be cancer or not. In Caitlin’s own words she said, “I could waste my life worrying about it (whether it’s cancer or not) or just enjoy my life and whatever happens happens”. Through it all she’s stayed close to the Lord and trusted in him to see her through. We’re so proud of her! 🥰
Caitlin has recovered amazingly well! A couple of weeks ago she went to a dance event at the YWAM campus and danced her heart out for almost 3 hours. She still has some pain if she coughs or lifts her arms up but apart from that she’s almost completely back to normal. She’s dropped a couple of her school courses but will be able to take one course for a month over the summer and can easily manage adding the other course to her course load next year. She’s on track to complete her remaining 4 courses this school year and is blitzing them one at a time right now. She’s just about to take her chemistry final tomorrow and is very excited that she’ll never have to do chemistry again after this week! 😂
I’ve been wanting to get this update out ever since I had the call from the Doctor late this morning, but it’s been a bit of a crazy day. One of our Church members lost her husband in a car accident today, so we had to pick her and her kids up and drive them to the hospital to identify the body & then drop them home again. Caitlin’s situation and this precious family losing their husband and father makes us so conscious of how life can change in a heartbeat and we need to be grateful for every moment of every day!
Thank you for your patience in waiting on the biopsy results with us! I’ve often thought about sending an update out over the last few weeks, but wanted to wait until we had news. The updates take me about 4 hours to write and send out individually, so I didn’t want to send one out and then find the results came through the next day. I had literally decided last night that I was going to send one out today though, no matter what, as so many of you have been asking if we have any news. So, the timing of the Doctors call couldn’t have been better!
God is SO good to us and we’re thankful for life and for friends and family like you who stand with us through thick and thin with your love and prayers! 😀Barney is doing much better, and we’re so blessed that you’ve all been praying for him as well! Thank you, thank you, thank you precious friends for standing with us! We’re so grateful for you all! 💕

March 09, 2023
Natalie Bruce
Natalie Bruce
Sorry Guys. I discovered there is also a limit of one update per hour so I had to wait an hour to send these updates.
Blessings,
Gill
 
Update - Wednesday March 1st
 
I wanted to write a short update as things have changed since I last wrote. We had a call from Caitlin’s Doctor, and they're quite concerned about the characteristics of Caitlin's tumor. They've had 2 different people look at it in Oahu and they think that it looks like it could be cancer. They're sending it off to the mainland (hopefully yesterday) to have someone else look at it and it could take another week before we have the results. Meanwhile they want us to fly back to Oahu for more tests on Monday. These will be to check if the cancer (if it is cancer) might have spread. At this stage the trip will be just one day of tests but if the results from the mainland come in before then and it is cancer, then I suspect they will have us stay and begin treatments right away. Not the news we wanted to hear, and we have to keep telling ourselves that it's not confirmed yet, but they did sound concerned. Caitlin is taking it in her stride. Today she said it doesn’t really bother her if she has to have another surgery. What bothers her more is the thought of another IV. She does have to have an IV for the tests on Monday so we’re trusting they’ll have the IV team do it for her and that they’d be able to get it in on the first try! Caitlin seems to be coming down with Becca’s cold so we’re praying that she’ll recover quickly and be over it before her tests on Monday! 
 
Her school has been amazing and is working with us as her situation evolves. They’ve given us many options including dropping some classes and possibly doing them in summer school to take the pressure off her now. They’re basically encouraging us to focus on her health above all else which we so appreciate! 
 
Barney’s back is a little better. He’s still in quite a bit of pain though and will probably need some more treatments before he’s completely pain free. 
Becca is almost completely well again and will stay with one of her best friends so we know she’s in good hands while we’re away.
 
I’ve had 4 different people offer to come and help around the house which is such a blessing. The first one comes tomorrow morning and I’m so thankful. It’s challenging letting people into ‘my mess’ and I joked with a friend that I was cleaning before the cleaners arrived. I’ve given up on that idea though and just have to humbly accept help. I’m truly so grateful! 
 
Thank you, thank you, thank you for all your love and prayers. 😀💕
 
 
Update - Monday March 6th
 
Talk about a roller coaster!!! Last Friday (March 3rd) we had yet another call from the Doctor and it turns out that they hadn’t even sent the tumor off to the mainland yet. He said that they had to put it through a process of ‘decalcification’ (whatever that means) before they sent it off. Apparently, after that process, they’re less concerned than they were previously that it might be cancer. It will hopefully be Fed Ex’d to the mainland either today or tomorrow and will take a week to 10 days (or longer) before we have the results. I think I’ve confused some of you as to what biopsy results we’re waiting on. The biopsy they did before surgery (they took about 20 samples) turned out to be unusable as there was too much blood in the samples. They are now doing a biopsy on the whole tumor. 
 
Right now we’re at the airport in Oahu waiting to fly back to Kona and we’re rejoicing! Caitlin had her Nuclear medicine full body bone scan and CT scan this morning and they were both clear of cancer! 👏🏽👏🏽👏🏽🥳🥳 So, if the biopsy does show that the tumor was cancer, at least we know it for sure hasn’t spread to any other bones or her lungs! 😀 Now we just wait on the results of the biopsy, which hopefully will be back in a week or so.
 
Thank you to all those who prayed about her IV. The nurse who would normally have done the IV was running late to work and they were very happy to call the IV team to put it in. They were able to get the IV in on the first try which was such a relief!😀 Also, Caitlin had googled the nuclear medicine scan and thought she’d have to have another MRI, which she was dreading. But, it turned out it was a different kind of machine and not nearly so scary so yet another relief!
 
We spent the day with a special friend who came and hung out with us while we waited for the nuclear medicine test. She then took us to the Ala Moana mall and waited for ages with us while we had a zoom call with our surgeon. We enjoyed a late lunch together and then she drove us back to the airport. What a gift and such a joy to be with her!
 
Meanwhile, Caitlin’s doing great! Her cold was very mild and she was mostly better within a couple of days. She’s had a cough the last couple of days which we’ve been concerned about but the surgeon wasn’t concerned at all so it must just be a lingering cough from her cold. The last few days her pain levels have been much more manageable and she’s now only taking tylanol every 6 hours. She’s been much less tired the last few days as well and hasn’t needed a nap in the afternoons which is awesome. Her scars are healing so well! Looking at her main scar the other day I said to her “you’re barely going to have a scar - over time the redness will fade”. Caitlin - pulling a sad face said “greatest of sadness”😂.
 
We had to fly in to Oahu yesterday afternoon as Caitlin’s first appointment was at 7.30am this morning. The insurance company booked a hotel for us and it was hilarious how bad it was. Driving up to it, there were 5 cop cars, fire trucks and an ambulance. Having no idea where we were Barney said, “I hope that’s not our hotel”. We’ll, you guessed it. It was indeed! After checking in, we went up in the elevator to our room and the whole corridor smelt of mildew. Going into our room the smell was even worse and in less than half an hour Barney needed his asthma inhaler. A little later, Caitlin and I popped down a few floors to the ice machine and when we came back to our floor the whole corridor now smelt like marijuana. It was kind of ironic that a health insurance company would put us up in a hotel that wasn’t very healthy. We all had just about the worst sleep of our lives as the beds were super uncomfortable. After checking out we had a text from the hotel saying 
“ Aloha Gillian ... Mahalo for staying with us.  We hope to welcome you back again”. Um, no thank you.😂🤣😂 We’re once again looking forward to being home again and in our own beds tonight!
 
Thank you to all those who’ve checked in to see how things are going today. We so appreciate everyone who is thinking of us, 
praying for us so faithfully and has supported us through this whole crazy journey! Love and hugs to you all.💕
 
March 09, 2023
Natalie Bruce
Natalie Bruce

I'm so sorry guys. I realized that I've totally 'dropped the ball' in updating this page. Life's been really full and busy and I've been struggling to keep up with correspondence. You all must be wondering what's happening with Caitlin. Well, she's doing amazing! I've been writing regular updates since the last update on this page which was on Feb 20th. I'll post them all now starting with the update I wrote on Feb 21st when Caitlin was suddenly discharged and we got to come home!!! Thank you so much for your love, prayers and financial support! They mean the world to us!!! 

Edit: I'll have to post this in smaller posts as there's a word limit. If it messes up the order of the updates just follow them in date order.

Update - Tuesday - Feb 21st

Well, I know i’ve been whining a little over the last few days at all the interruptions 😂but today we were woken up out of a deep sleep at 7.25am by the surgeon to ask how we’d feel about going home today! Yes, you read that right!!! TODAY!!! 👏🏽👏🏽👏🏽🥳🥳🥳You can be sure I wasn’t complaining about that interruption 😂! I literally had to ask him if he was serious, as in my sleep deprived state I couldn’t quite believe it was true! From then on it was a whirlwind of final checkups for Caitlin, a final chest x-ray, the removal of her chest tube (which literally took seconds and felt weird but didn’t hurt) packing, booking tickets and getting to the airport for our flight. By the time we found out our flight details, we literally had 2 hours to get a taxi to the airport from the hospital, check our bags in, get through security, head to our gate and board the plane. We had to book Barney’s flight in the taxi on the way to the airport as Caitlin’s insurance company only booked tickets for Caitlin and I. Thankfully we were able to get him on the same flight!😀

Poor Barney woke up with his back hurting more today than yesterday and had to clean his room and bathroom at the Ronald McDonald House thoroughly before checking out. He got to the hospital just about 20 minutes before we had to get a taxi to the airport. He couldn’t sleep until after 5am last night and I woke him at 7.30am with the news that we were going home today so he’s operating on very little sleep. We are all (but especially Caitlin) going to enjoy sleeping in our own beds tonight! 

Thankfully, we were able to get 2 wheelchairs at the airport, so with the help of a hospital worker who pushed one, we made it to our flight in the nick of time! They were actually calling for us to find out where we were, as they couldn’t board other passengers until they’d boarded all the wheelchair passengers. We couldn’t hurry though as every bump we went over (of which their were many on the airport floor) hurt Caitlin.😬🙁

As I write this we’re in the air on our way home to Kona!😀👏🏽👏🏽👏🏽🥳🥳I’m not sure when I’ll get to send this out as I have no WIFI on the plane and will be busy getting Caitlin settled once we get home, but I’ll send it some time tonight for sure!

We still don’t have the results from the biopsy of the tumor but the hospital will call us once they know. If this is truly not cancer then we have only one follow up visit with the surgeon in Honolulu in 2 weeks time and then that will be the end of this crazy season in our lives!!! I’m still a little befuddled and can’t quite believe we’re on our way home!!! The trip to Honolulu, after learning about the tumor, happened in a heartbeat and this return journey seems to have happened just as quickly! Caitlin’s speedy recovery seems kind of miraculous and we’re so thankful for all the love, care and prayers from all of you over this almost 2 week journey! It will be 2 weeks tomorrow since Caitlin fainted and this journey began and we’re so looking forward to life returning to normal! Of course she needs some recovery time to be completely well, but at the rate she’s healing I don’t think it’s going to take too long at all!😀

Update: We’ve now been home for 4 hours and Caitlin is doing amazingly! She’s only taking Tylanol and ibuprofen which are managing her pain pretty well and she’s sitting up

In bed looking as if nothing ever happened!😀 I can’t begin to tell you how happy we are to have her home!!! We pick Becca up from her friends house tomorrow and it’ll be soooo good to all be together together again after so long! Becca has come down with some kind of cold🙁, so once again your prayers are appreciated for quick healing for her and that Caitlin wouldn’t catch it!

Well, I’m signing out tonight exhausted but a very happy camper!😀 I won’t send out nightly updates any more but will update you for sure once we hear about the biopsy results. Thank you again from the bottom of our hearts for all your love and support! We are so blessed to have friends and family who care so much!!! God bless you all!💕

P.S I won’t reply to messages tonight as I’m just too tired but will try my best to get to them tomorrow.😀

 

Update - Sunday - Feb 26th
 
Lots of you have been messaging to ask if we’ve heard anything, so I wanted to send out a brief update to let you know that we’re still waiting. No news on the biopsy results yet! 🙁Hopefully no news is good news! I called the hospital on Friday to ask if the results had come in and they said they were still pending. Barney and I have a real peace about it though and are not really worried about the results. We’re trusting it’s not cancer, but if turns out that it is then we know that the Lord will be with us through the whole process.  His peace while we were in the hospital was so amazing and I know he’ll continue to give us that peace no matter what the results! 
 
Caitlin is doing amazingly well considering all she’s gone though! She still gets tired really easily and needs a nap almost every day but as she said, “that’s an improvement on 3 naps a day in the hospital”!😂 She’s still on round the clock pain meds so I wake her up every 3 hours in the night to stay on top of the pain. That keeps it at a manageable level most of the time. They gave her something during surgery that we understood would keep her pretty numb for 5 to 6 weeks, but the numbness seems to be wearing off already so yesterday and today the pain got a little worse. It’s still bearable though and I’m just thankful they gave her that as I can’t imagine how much pain she would have been in without it.  
 
Tomorrow, we have a meeting with the vice principal of Caitlin’s school to discuss options as she’s now 3 weeks behind in her schoolwork. She starts working but just gets tired so easily so isn’t able to get a lot done right now. I’m sure that will improve as the days go by! 
 
Barney is doing better but is still in quite a bit of pain. He went to a chiropractor and a physical therapist last week so that gave him some relief. Becca has had a really bad cold but is at the ‘tail end’ of it now and is getting better every day. We’ve all been quite exhausted but are slowly getting over the tiredness. I’ve been a little overwhelmed with all the jobs that had built up while we were away in NZ for 3 weeks for my Mum’s memorial service and then Oahu for 2 weeks at the hospital. I’m so sorry for taking so long to reply to some of you. I realized that in the hospital my only 2 jobs were taking care of Caitlin and keeping people up to date with how things were going. At home there are so many things to catch up on, so I’m trying to take it one job at a time and not get overwhelmed by the big picture. We only just got our Christmas decorations taken down yesterday! 😂 Sadly, texts and messages have been a little neglected. 😬 
 
We continue to be so thankful for all of you though and your amazing support during this time! As soon as we get the biopsy results I’ll send another update to let you all know. Until then, bless you all and thank you so much for your love and friendship! 💕
 
 
 
 
February 21, 2023
Natalie Bruce
Natalie Bruce

Update - Monday - Feb 20th

Well, today has been a much better day, though in the early hours of the morning it didn’t start out well! 🙁 Around midnight they came to give Caitlin pain meds through her IV and it suddenly started hurting really badly so the nurse had to take it out.🙁 She then said she had to put a new one in and Caitlin just started crying😢. We begged the nurse to wait until the IV team could come in the morning as Caitlin had had such a traumatic time last time they attempted to put in an IV at night. She said no because they had to give her pain meds via the IV. Poor Caitlin said that she’d rather endure the pain from the surgery than to have the IV put back in😢😢😢. She tried to reassure us that they could use the vein finder but they’d used that last time without success! So, after we asked the nurse over and over again to wait until morning, seeing Caitlin’s distress, she left the room to ask the doctor on call if we could just wait until morning to redo the IV. She disappeared and it was a very long half hour before she came back. She still didn’t have an answer from the doctor so she just encouraged us to go to sleep and she’d let us know the answer during the night once she heard back from the him. Praise God she finally came to tell us that he'd agreed and that he’d rewritten her meds so that she could take them by mouth and not IV. Caitlin was so exhausted and just wanted to sleep so it was a relief to finally get to sleep around 1.20am. By 7.45am we’d only had to wake up 8 times which was an improvement on the night before!

This morning the daytime Doctor came in and said she does NOT have to have another IV because she's doing so well drinking water!👏🏽👏🏽👏🏽 She drank 1600ml in the night to try and prove to them that she didn’t need the IV😂😢. I can tell you I was doing a happy dance in my heart as it was agony watching her so upset!

The Doctor also said that she could come off the suction for the chest tube today so hopefully tomorrow she’ll have the tube taken out. They said it doesn’t hurt to take out but Caitlin’s not convinced as they said that about something else and she said it hurt like crazy! They just pull this tube out while she’s wide awake. Ouch! I wouldn’t be excited about that either!!! 😬It does mean that she’ll finally be able to take a shower and wash her hair though so that’ll be awesome! 😀

She had another chest x-ray this morning so we’ll see if we get any better results from this one tomorrow when we talk to the doctor. The doctor said she hasn’t had a fever in 24 hours so that’s good news though I don’t understand why she’s having night sweats if that’s the case. Early this morning (at 5.30am) her bed was completely drenched again so I had to put all new sheets and pillow cases on her bed so that she wouldn’t freeze like she had the night before.  

Barney texted this morning to say that he’d woken up and could hardly stand up straight or walk. He must have pulled a muscle and could barely move. Finally around 1pm he managed to get an Uber here where I could give him some pain killers and he’s been much better dosed up on those. We’d appreciate your prayers for him as well tonight, that he’d wake up feeling much better tomorrow!

Late this afternoon, a friend came to visit and we went to the hospital dining room with her for coffee and delicious doughnuts that she’d bought for us! It was so lovely to see her as it’s been a long time since we’ve been able to catch up properly! Caitlin once again walked all the way there and back and was much faster than yesterday, so it really does feel like she’s on the mend! 😀👏🏽👏🏽👏🏽🥳 Today I could finally see the light at the end of the tunnel and could picture us going home sometime soon!😀

Another day bites the dust and we look forward to another even better day tomorrow! 😀

Blessings upon you all! 
Gill

Note: last night in my update I said: 
‘It was inconclusive though as the Gor-Tex they repaired her lung with made it hard to see’.  

I meant to say her rib. Not her lung!😬

February 20, 2023
Natalie Bruce
Natalie Bruce

Update - Sunday - Feb 19th

Last night was another rough night!!!
Around 9pm they again had trouble controlling Caitlin’s pain as they’d given her all the meds she was allowed & had to wait quite awhile to give her more. She finally slept and I finally got to bed around 12am. Between 12 and 7.30am I had to get up at least 9 times. It hurts Caitlin to cough so as soon as she started coughing I had to jump out of bed and give her water. Peeing is a huge performance, with 3 things to unplug and an IV pole and a chest drain box to move with us. It all takes a long time as she was in so much pain, so we had to move very slowly. She woke up drenched in sweat so we had to change all her pillow cases. She was too exhausted to change the whole bed but then she was shivering from being soaked and the shivering hurt like crazy. Alarms went off multiple times on her IV so we had to call the nurse in. And all that was besides the nurses regular visits to give meds and take vitals every 3 hours. Needless to say we were both exhausted when we woke up to start the day! I woke up to lots of incredibly encouraging messages and they made me cry today! Two more friends said they’d been praying for us in the middle of the night. What a blessing!🥰

The Doctor decided to do more blood tests today to check for infection, to try to find out why Caitlin’s had such a persistent fever. Thankfully the labs showed no sign of infection! Her hemoglobin was 8.5 which is a bit low but they don’t give a blood transfusion until it’s down to 8. They also did another repeat x-ray to check to see if her lungs are retaining fluid. It was inconclusive though as the Gor-Tex they repaired her lung with made it hard to see.  

They seem to think the fever is to be expected after major surgery and also before surgery because the tumor was irritating the lungs. That would explain the persistent fever she’s had since she arrived in the hospital. She does seem to be cooler today, though it’s hard to know if she has a fever or not as she’s on round the clock meds. The true test will be to see if she wakes up drenched in sweat in the night again tonight.

Around mid-morning today Caitlin started to feel much better and has felt better most of the day. She’s still in a lot of pain but it’s much more manageable! 😀 A friend bought us Chinese food for lunch and the nurse said Caitlin could briefly be free of all her wires and her IV, so she WALKED all the way to the cafeteria with only her chest drain in tow. That might not sound like much but it’s a really long way and she walked there AND back! She was pretty sore by the time we got back to her room but what an accomplishment! 👏🏽👏🏽👏🏽🥳 We stayed in the cafeteria for about 1/2 an hour and it was so so good to see her out of her hospital room! 

Yesterday I forgot to say that other friends bought us Indian food for lunch. It was a blessing to see them and they and the awesome food were a bright spot in a very difficult day!😀

Barney has been blessed to stay with precious friends the last 3 nights and they’ve been amazing! Doing our laundry, feeding him yummy breakfasts and ferrying him back and forth to the hospital. Today he moved to the Ronald McDonald House so that he could be closer to the hospital. It’s only about a 5 minute drive and they have a shuttle that comes to the hospital in the morning and goes back to the home at night so that’s super convenient! Once Caitlin’s a little better, I plan to go there for a few hours one afternoon and try to catch up on some sleep.😀

Someone else emailed today to say that they’d noticed that they’d been hugging their son more than usual and generally lingering a bit around him and being a bit needy. 🥳 His son said, "I get it, but I need more space to breathe".😂 🤣😂 
All laughing aside, this sudden crisis in our family has made me so aware that we need to treasure every moment with our kids because things can change in a heartbeat!

We’ll, once again I’m exhausted (I’ve drifted off typing this at least 10 times) but am looking forward to a new and even better day tomorrow! 😀 We feel so uplifted and blessed by everyone’s love and support and we’re so blessed to  see how very many people care for our family! Thank you for your love and for coming along on this journey with us!💕

Daniel Mcdermott

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BlessingMunnalallFamily
Natalie Bruce

Natalie Bruce

Kailua-kona hawaii

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Caitlin Munnalall

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Hi everyone,

Below is an update on Caitlin’s situation. 
let’s share this page around and help bless this family in a tough time. 
I really felt to create this page to encourage this beautiful family.
They have not asked for this, but as we all know expenses do add up and a relief from that will be so wonderful during this trying time. 

Let’s BLESS them! 

 

update here from Gill, 

 Caitlin suddenly fainted the other day at a friends house and through the testing process to find out why, they discovered a large mass that they believe is in her lung, rib and chest wall. We were flown to Honolulu as our island can’t deal with situations like this.  We’re in the midst of many tests and thousands of questions. In an hour Caitlin will be having a needle biopsy under sedation to try to determine what the growth is and to determine a treatment plan and where we go from here. All prayers are deeply appreciated as we navigate through this challenging time! 

Update:

Here’s the update! Thank you so much for your prayers!!!💕 

Update - Friday  - Feb 17th

Written at 12.30pm: 

They came to take Caitlin to surgery an hour early (at 10am) today which was a blessing! Her surgeon came to her room first and spent almost half an hour explaining all of his thought processes. He told us about all the doctors/surgeons/cancer specialists he’s consulted with before making the decision to proceed this way today. He explained exactly what he planned to do, answered questions, and all in all helped us to feel completely confident in his abilities. They will test the tumor mid surgery and if it shows any cancerous cells they will immediately change tack and do the more aggressive surgery that would take out more ribs. Usually if the tumor is cancerous they like to shrink it first before surgery, but he explained that because she’s been bleeding from the tumor, the cancer cells would already be outside the tumor so they would want to just get it out quickly and then proceed with chemo.

2.05pm 

The surgeon came out to say the surgery is all over and it went really well! He’s very happy with how it went. The preliminary test they did for cancer in the middle of the surgery showed no cancer cells. 😀👏🏽👏🏽👏🏽We have to wait about a week before we will know for sure.😬🙁 We’re very thankful the surgery only took 3 hours and not the 4-6 hours they’d estimated!

3.15pm - They called Barney and I both into the recovery room and we stayed with Caitlin for about 10 minutes. They briefly broke the rules for us as there’s supposed to only be one person in the recovery room with her at a time. Now we’re taking turns with her, so Barney’s in with her right now. She’s still very sleepy and slurring her words. She said she feels a little loopy.😂 She’s in quite a bit of pain but they’re giving her pain meds every 10 minutes to manage it. Through it all she’s so incredibly polite and thanking everyone for everything they’re doing for her! 🥰

They only had to take out about a 4 inch (I think it was) piece of her rib, which is better than we expected! The surgeon said that because the blood had been pooling in her chest cavity for so long there was quite a lot of scar tissue and everything was stuck together. The blood clot was essentially squishing her lung, so she should be able to breathe much better now. He had to do a lot of cleaning up and free up her lung before he could even get to the tumor and see exactly where it was. She has about a 10 inch incision and the tumor went a lot deeper into the chest cavity than he was expecting.

Even though he didn’t have to take out a huge chunk of rib, there was a pretty big hole (in the words of the surgeon) so they did some reconstruction with a piece of Gore-tex to add structure and strength.

She has 2 more IV’s in, so 3 altogether and it looks like they poked her once more but were unsuccessful again with a 4th. I think she’s starting to feel a bit like a pin cushion!😬🙁 They we’re prepared with blood in case they needed to do a blood transfusion but we’re very thankful she didn’t need one!

4pm Caitlin was moved back to her room and now at 5.10pm she’s fast asleep. She was in a lot of pain with even the smallest movements so they have her dosed up on morphine right now. Hopefully she’ll sleep the rest of the day/night away and wake up feeling a little better in the morning!

6pm The nurse woke her up to check her vitals and she was sounding a lot less woozy. The nurse showed us the pictures of the tumor after it was removed and it’s crazy to see how big it was! She’s in pain again so they’re giving her more pain meds.

Thank you so much for all of your incredibly encouraging messages! I can usually ‘hold it together’ until I read Caitlin or Barney one of your messages and then I find it a little harder to not tear up. We’re so thankful for the amazing support we have that’s helping us through this journey!

I may not be able to reply personally to you all today as there have been so many encouragements flying in, but please take this as a huge big ‘thank you’ from the bottom of all our hearts!!!💕

Love to you all💕!

Fundraiser Updates (5)

April 05, 2023
Natalie Bruce
Natalie Bruce

Update - Tuesday April 4th

Hi precious friends and family.
We have wonderful news! FINALLY!!! I had a call today from Caitlin’s doctor in Honolulu to say that the tumor is benign! Thank you LORD!!!! 😀👏🏽👏🏽👏🏽🥳
The type of tumor she had is called an osteoblastoma with a secondary aneurysmal bone cyst. Both tumors are very rare, and both are not usually seen in the rib, while only a 3rd of all cases are seen in girls. The treatment is to remove the tumor, so we’re thankful that they went ahead and did that immediately! There is a chance of it recurring if they didn’t remove it all so they’re going to have us go back to Honolulu in a month or two for another MRI, just to make sure they got it all out. If the MRI isn’t clear, then they’ll have us go back again for another CT scan. The surgeon is  pretty confident they did get it all though so we’re not concerned. We’ve been waiting sooo long for the results so it’s a relief to finally have them back. 😀Every week we’ve called the Doctor (often multiple times) and every week they would tell us there were still no results and to call back next week. Today he was very apologetic that we’ve had to wait so long, but apparently there are very few places that can do the specialized tests they wanted done on the tumor so it just takes time.
Last Monday we flew back to Oahu for a follow up appointment with Caitlin’s surgeon. Sadly, he was stuck in surgery so we saw the other surgeon who had assisted with her surgery. He thought her scar was healing really well. He then told us to call back in a month if we hadn’t heard back from them with the biopsy results. We’re VERY thankful that we don’t have to wait yet another month and that the results are finally here!
We’re so thankful to the Lord for his incredible peace throughout this whole crazy journey.  As we’ve had to wait such an incredibly long time for the results, people kept saying to us “ you must be so stressed”,  but honestly we haven’t been at all. God’s peace that passes understanding has been with us every moment of every day and we’ve just been resting in him knowing that he would continue to be our strength and peace whether it turned out to be cancer or not. In Caitlin’s own words she said, “I could waste my life worrying about it (whether it’s cancer or not) or just enjoy my life and whatever happens happens”. Through it all she’s stayed close to the Lord and trusted in him to see her through. We’re so proud of her! 🥰
Caitlin has recovered amazingly well! A couple of weeks ago she went to a dance event at the YWAM campus and danced her heart out for almost 3 hours. She still has some pain if she coughs or lifts her arms up but apart from that she’s almost completely back to normal. She’s dropped a couple of her school courses but will be able to take one course for a month over the summer and can easily manage adding the other course to her course load next year. She’s on track to complete her remaining 4 courses this school year and is blitzing them one at a time right now. She’s just about to take her chemistry final tomorrow and is very excited that she’ll never have to do chemistry again after this week! 😂
I’ve been wanting to get this update out ever since I had the call from the Doctor late this morning, but it’s been a bit of a crazy day. One of our Church members lost her husband in a car accident today, so we had to pick her and her kids up and drive them to the hospital to identify the body & then drop them home again. Caitlin’s situation and this precious family losing their husband and father makes us so conscious of how life can change in a heartbeat and we need to be grateful for every moment of every day!
Thank you for your patience in waiting on the biopsy results with us! I’ve often thought about sending an update out over the last few weeks, but wanted to wait until we had news. The updates take me about 4 hours to write and send out individually, so I didn’t want to send one out and then find the results came through the next day. I had literally decided last night that I was going to send one out today though, no matter what, as so many of you have been asking if we have any news. So, the timing of the Doctors call couldn’t have been better!
God is SO good to us and we’re thankful for life and for friends and family like you who stand with us through thick and thin with your love and prayers! 😀Barney is doing much better, and we’re so blessed that you’ve all been praying for him as well! Thank you, thank you, thank you precious friends for standing with us! We’re so grateful for you all! 💕

March 09, 2023
Natalie Bruce
Natalie Bruce
Sorry Guys. I discovered there is also a limit of one update per hour so I had to wait an hour to send these updates.
Blessings,
Gill
 
Update - Wednesday March 1st
 
I wanted to write a short update as things have changed since I last wrote. We had a call from Caitlin’s Doctor, and they're quite concerned about the characteristics of Caitlin's tumor. They've had 2 different people look at it in Oahu and they think that it looks like it could be cancer. They're sending it off to the mainland (hopefully yesterday) to have someone else look at it and it could take another week before we have the results. Meanwhile they want us to fly back to Oahu for more tests on Monday. These will be to check if the cancer (if it is cancer) might have spread. At this stage the trip will be just one day of tests but if the results from the mainland come in before then and it is cancer, then I suspect they will have us stay and begin treatments right away. Not the news we wanted to hear, and we have to keep telling ourselves that it's not confirmed yet, but they did sound concerned. Caitlin is taking it in her stride. Today she said it doesn’t really bother her if she has to have another surgery. What bothers her more is the thought of another IV. She does have to have an IV for the tests on Monday so we’re trusting they’ll have the IV team do it for her and that they’d be able to get it in on the first try! Caitlin seems to be coming down with Becca’s cold so we’re praying that she’ll recover quickly and be over it before her tests on Monday! 
 
Her school has been amazing and is working with us as her situation evolves. They’ve given us many options including dropping some classes and possibly doing them in summer school to take the pressure off her now. They’re basically encouraging us to focus on her health above all else which we so appreciate! 
 
Barney’s back is a little better. He’s still in quite a bit of pain though and will probably need some more treatments before he’s completely pain free. 
Becca is almost completely well again and will stay with one of her best friends so we know she’s in good hands while we’re away.
 
I’ve had 4 different people offer to come and help around the house which is such a blessing. The first one comes tomorrow morning and I’m so thankful. It’s challenging letting people into ‘my mess’ and I joked with a friend that I was cleaning before the cleaners arrived. I’ve given up on that idea though and just have to humbly accept help. I’m truly so grateful! 
 
Thank you, thank you, thank you for all your love and prayers. 😀💕
 
 
Update - Monday March 6th
 
Talk about a roller coaster!!! Last Friday (March 3rd) we had yet another call from the Doctor and it turns out that they hadn’t even sent the tumor off to the mainland yet. He said that they had to put it through a process of ‘decalcification’ (whatever that means) before they sent it off. Apparently, after that process, they’re less concerned than they were previously that it might be cancer. It will hopefully be Fed Ex’d to the mainland either today or tomorrow and will take a week to 10 days (or longer) before we have the results. I think I’ve confused some of you as to what biopsy results we’re waiting on. The biopsy they did before surgery (they took about 20 samples) turned out to be unusable as there was too much blood in the samples. They are now doing a biopsy on the whole tumor. 
 
Right now we’re at the airport in Oahu waiting to fly back to Kona and we’re rejoicing! Caitlin had her Nuclear medicine full body bone scan and CT scan this morning and they were both clear of cancer! 👏🏽👏🏽👏🏽🥳🥳 So, if the biopsy does show that the tumor was cancer, at least we know it for sure hasn’t spread to any other bones or her lungs! 😀 Now we just wait on the results of the biopsy, which hopefully will be back in a week or so.
 
Thank you to all those who prayed about her IV. The nurse who would normally have done the IV was running late to work and they were very happy to call the IV team to put it in. They were able to get the IV in on the first try which was such a relief!😀 Also, Caitlin had googled the nuclear medicine scan and thought she’d have to have another MRI, which she was dreading. But, it turned out it was a different kind of machine and not nearly so scary so yet another relief!
 
We spent the day with a special friend who came and hung out with us while we waited for the nuclear medicine test. She then took us to the Ala Moana mall and waited for ages with us while we had a zoom call with our surgeon. We enjoyed a late lunch together and then she drove us back to the airport. What a gift and such a joy to be with her!
 
Meanwhile, Caitlin’s doing great! Her cold was very mild and she was mostly better within a couple of days. She’s had a cough the last couple of days which we’ve been concerned about but the surgeon wasn’t concerned at all so it must just be a lingering cough from her cold. The last few days her pain levels have been much more manageable and she’s now only taking tylanol every 6 hours. She’s been much less tired the last few days as well and hasn’t needed a nap in the afternoons which is awesome. Her scars are healing so well! Looking at her main scar the other day I said to her “you’re barely going to have a scar - over time the redness will fade”. Caitlin - pulling a sad face said “greatest of sadness”😂.
 
We had to fly in to Oahu yesterday afternoon as Caitlin’s first appointment was at 7.30am this morning. The insurance company booked a hotel for us and it was hilarious how bad it was. Driving up to it, there were 5 cop cars, fire trucks and an ambulance. Having no idea where we were Barney said, “I hope that’s not our hotel”. We’ll, you guessed it. It was indeed! After checking in, we went up in the elevator to our room and the whole corridor smelt of mildew. Going into our room the smell was even worse and in less than half an hour Barney needed his asthma inhaler. A little later, Caitlin and I popped down a few floors to the ice machine and when we came back to our floor the whole corridor now smelt like marijuana. It was kind of ironic that a health insurance company would put us up in a hotel that wasn’t very healthy. We all had just about the worst sleep of our lives as the beds were super uncomfortable. After checking out we had a text from the hotel saying 
“ Aloha Gillian ... Mahalo for staying with us.  We hope to welcome you back again”. Um, no thank you.😂🤣😂 We’re once again looking forward to being home again and in our own beds tonight!
 
Thank you to all those who’ve checked in to see how things are going today. We so appreciate everyone who is thinking of us, 
praying for us so faithfully and has supported us through this whole crazy journey! Love and hugs to you all.💕
 
March 09, 2023
Natalie Bruce
Natalie Bruce

I'm so sorry guys. I realized that I've totally 'dropped the ball' in updating this page. Life's been really full and busy and I've been struggling to keep up with correspondence. You all must be wondering what's happening with Caitlin. Well, she's doing amazing! I've been writing regular updates since the last update on this page which was on Feb 20th. I'll post them all now starting with the update I wrote on Feb 21st when Caitlin was suddenly discharged and we got to come home!!! Thank you so much for your love, prayers and financial support! They mean the world to us!!! 

Edit: I'll have to post this in smaller posts as there's a word limit. If it messes up the order of the updates just follow them in date order.

Update - Tuesday - Feb 21st

Well, I know i’ve been whining a little over the last few days at all the interruptions 😂but today we were woken up out of a deep sleep at 7.25am by the surgeon to ask how we’d feel about going home today! Yes, you read that right!!! TODAY!!! 👏🏽👏🏽👏🏽🥳🥳🥳You can be sure I wasn’t complaining about that interruption 😂! I literally had to ask him if he was serious, as in my sleep deprived state I couldn’t quite believe it was true! From then on it was a whirlwind of final checkups for Caitlin, a final chest x-ray, the removal of her chest tube (which literally took seconds and felt weird but didn’t hurt) packing, booking tickets and getting to the airport for our flight. By the time we found out our flight details, we literally had 2 hours to get a taxi to the airport from the hospital, check our bags in, get through security, head to our gate and board the plane. We had to book Barney’s flight in the taxi on the way to the airport as Caitlin’s insurance company only booked tickets for Caitlin and I. Thankfully we were able to get him on the same flight!😀

Poor Barney woke up with his back hurting more today than yesterday and had to clean his room and bathroom at the Ronald McDonald House thoroughly before checking out. He got to the hospital just about 20 minutes before we had to get a taxi to the airport. He couldn’t sleep until after 5am last night and I woke him at 7.30am with the news that we were going home today so he’s operating on very little sleep. We are all (but especially Caitlin) going to enjoy sleeping in our own beds tonight! 

Thankfully, we were able to get 2 wheelchairs at the airport, so with the help of a hospital worker who pushed one, we made it to our flight in the nick of time! They were actually calling for us to find out where we were, as they couldn’t board other passengers until they’d boarded all the wheelchair passengers. We couldn’t hurry though as every bump we went over (of which their were many on the airport floor) hurt Caitlin.😬🙁

As I write this we’re in the air on our way home to Kona!😀👏🏽👏🏽👏🏽🥳🥳I’m not sure when I’ll get to send this out as I have no WIFI on the plane and will be busy getting Caitlin settled once we get home, but I’ll send it some time tonight for sure!

We still don’t have the results from the biopsy of the tumor but the hospital will call us once they know. If this is truly not cancer then we have only one follow up visit with the surgeon in Honolulu in 2 weeks time and then that will be the end of this crazy season in our lives!!! I’m still a little befuddled and can’t quite believe we’re on our way home!!! The trip to Honolulu, after learning about the tumor, happened in a heartbeat and this return journey seems to have happened just as quickly! Caitlin’s speedy recovery seems kind of miraculous and we’re so thankful for all the love, care and prayers from all of you over this almost 2 week journey! It will be 2 weeks tomorrow since Caitlin fainted and this journey began and we’re so looking forward to life returning to normal! Of course she needs some recovery time to be completely well, but at the rate she’s healing I don’t think it’s going to take too long at all!😀

Update: We’ve now been home for 4 hours and Caitlin is doing amazingly! She’s only taking Tylanol and ibuprofen which are managing her pain pretty well and she’s sitting up

In bed looking as if nothing ever happened!😀 I can’t begin to tell you how happy we are to have her home!!! We pick Becca up from her friends house tomorrow and it’ll be soooo good to all be together together again after so long! Becca has come down with some kind of cold🙁, so once again your prayers are appreciated for quick healing for her and that Caitlin wouldn’t catch it!

Well, I’m signing out tonight exhausted but a very happy camper!😀 I won’t send out nightly updates any more but will update you for sure once we hear about the biopsy results. Thank you again from the bottom of our hearts for all your love and support! We are so blessed to have friends and family who care so much!!! God bless you all!💕

P.S I won’t reply to messages tonight as I’m just too tired but will try my best to get to them tomorrow.😀

 

Update - Sunday - Feb 26th
 
Lots of you have been messaging to ask if we’ve heard anything, so I wanted to send out a brief update to let you know that we’re still waiting. No news on the biopsy results yet! 🙁Hopefully no news is good news! I called the hospital on Friday to ask if the results had come in and they said they were still pending. Barney and I have a real peace about it though and are not really worried about the results. We’re trusting it’s not cancer, but if turns out that it is then we know that the Lord will be with us through the whole process.  His peace while we were in the hospital was so amazing and I know he’ll continue to give us that peace no matter what the results! 
 
Caitlin is doing amazingly well considering all she’s gone though! She still gets tired really easily and needs a nap almost every day but as she said, “that’s an improvement on 3 naps a day in the hospital”!😂 She’s still on round the clock pain meds so I wake her up every 3 hours in the night to stay on top of the pain. That keeps it at a manageable level most of the time. They gave her something during surgery that we understood would keep her pretty numb for 5 to 6 weeks, but the numbness seems to be wearing off already so yesterday and today the pain got a little worse. It’s still bearable though and I’m just thankful they gave her that as I can’t imagine how much pain she would have been in without it.  
 
Tomorrow, we have a meeting with the vice principal of Caitlin’s school to discuss options as she’s now 3 weeks behind in her schoolwork. She starts working but just gets tired so easily so isn’t able to get a lot done right now. I’m sure that will improve as the days go by! 
 
Barney is doing better but is still in quite a bit of pain. He went to a chiropractor and a physical therapist last week so that gave him some relief. Becca has had a really bad cold but is at the ‘tail end’ of it now and is getting better every day. We’ve all been quite exhausted but are slowly getting over the tiredness. I’ve been a little overwhelmed with all the jobs that had built up while we were away in NZ for 3 weeks for my Mum’s memorial service and then Oahu for 2 weeks at the hospital. I’m so sorry for taking so long to reply to some of you. I realized that in the hospital my only 2 jobs were taking care of Caitlin and keeping people up to date with how things were going. At home there are so many things to catch up on, so I’m trying to take it one job at a time and not get overwhelmed by the big picture. We only just got our Christmas decorations taken down yesterday! 😂 Sadly, texts and messages have been a little neglected. 😬 
 
We continue to be so thankful for all of you though and your amazing support during this time! As soon as we get the biopsy results I’ll send another update to let you all know. Until then, bless you all and thank you so much for your love and friendship! 💕
 
 
 
 
February 21, 2023
Natalie Bruce
Natalie Bruce

Update - Monday - Feb 20th

Well, today has been a much better day, though in the early hours of the morning it didn’t start out well! 🙁 Around midnight they came to give Caitlin pain meds through her IV and it suddenly started hurting really badly so the nurse had to take it out.🙁 She then said she had to put a new one in and Caitlin just started crying😢. We begged the nurse to wait until the IV team could come in the morning as Caitlin had had such a traumatic time last time they attempted to put in an IV at night. She said no because they had to give her pain meds via the IV. Poor Caitlin said that she’d rather endure the pain from the surgery than to have the IV put back in😢😢😢. She tried to reassure us that they could use the vein finder but they’d used that last time without success! So, after we asked the nurse over and over again to wait until morning, seeing Caitlin’s distress, she left the room to ask the doctor on call if we could just wait until morning to redo the IV. She disappeared and it was a very long half hour before she came back. She still didn’t have an answer from the doctor so she just encouraged us to go to sleep and she’d let us know the answer during the night once she heard back from the him. Praise God she finally came to tell us that he'd agreed and that he’d rewritten her meds so that she could take them by mouth and not IV. Caitlin was so exhausted and just wanted to sleep so it was a relief to finally get to sleep around 1.20am. By 7.45am we’d only had to wake up 8 times which was an improvement on the night before!

This morning the daytime Doctor came in and said she does NOT have to have another IV because she's doing so well drinking water!👏🏽👏🏽👏🏽 She drank 1600ml in the night to try and prove to them that she didn’t need the IV😂😢. I can tell you I was doing a happy dance in my heart as it was agony watching her so upset!

The Doctor also said that she could come off the suction for the chest tube today so hopefully tomorrow she’ll have the tube taken out. They said it doesn’t hurt to take out but Caitlin’s not convinced as they said that about something else and she said it hurt like crazy! They just pull this tube out while she’s wide awake. Ouch! I wouldn’t be excited about that either!!! 😬It does mean that she’ll finally be able to take a shower and wash her hair though so that’ll be awesome! 😀

She had another chest x-ray this morning so we’ll see if we get any better results from this one tomorrow when we talk to the doctor. The doctor said she hasn’t had a fever in 24 hours so that’s good news though I don’t understand why she’s having night sweats if that’s the case. Early this morning (at 5.30am) her bed was completely drenched again so I had to put all new sheets and pillow cases on her bed so that she wouldn’t freeze like she had the night before.  

Barney texted this morning to say that he’d woken up and could hardly stand up straight or walk. He must have pulled a muscle and could barely move. Finally around 1pm he managed to get an Uber here where I could give him some pain killers and he’s been much better dosed up on those. We’d appreciate your prayers for him as well tonight, that he’d wake up feeling much better tomorrow!

Late this afternoon, a friend came to visit and we went to the hospital dining room with her for coffee and delicious doughnuts that she’d bought for us! It was so lovely to see her as it’s been a long time since we’ve been able to catch up properly! Caitlin once again walked all the way there and back and was much faster than yesterday, so it really does feel like she’s on the mend! 😀👏🏽👏🏽👏🏽🥳 Today I could finally see the light at the end of the tunnel and could picture us going home sometime soon!😀

Another day bites the dust and we look forward to another even better day tomorrow! 😀

Blessings upon you all! 
Gill

Note: last night in my update I said: 
‘It was inconclusive though as the Gor-Tex they repaired her lung with made it hard to see’.  

I meant to say her rib. Not her lung!😬

February 20, 2023
Natalie Bruce
Natalie Bruce

Update - Sunday - Feb 19th

Last night was another rough night!!!
Around 9pm they again had trouble controlling Caitlin’s pain as they’d given her all the meds she was allowed & had to wait quite awhile to give her more. She finally slept and I finally got to bed around 12am. Between 12 and 7.30am I had to get up at least 9 times. It hurts Caitlin to cough so as soon as she started coughing I had to jump out of bed and give her water. Peeing is a huge performance, with 3 things to unplug and an IV pole and a chest drain box to move with us. It all takes a long time as she was in so much pain, so we had to move very slowly. She woke up drenched in sweat so we had to change all her pillow cases. She was too exhausted to change the whole bed but then she was shivering from being soaked and the shivering hurt like crazy. Alarms went off multiple times on her IV so we had to call the nurse in. And all that was besides the nurses regular visits to give meds and take vitals every 3 hours. Needless to say we were both exhausted when we woke up to start the day! I woke up to lots of incredibly encouraging messages and they made me cry today! Two more friends said they’d been praying for us in the middle of the night. What a blessing!🥰

The Doctor decided to do more blood tests today to check for infection, to try to find out why Caitlin’s had such a persistent fever. Thankfully the labs showed no sign of infection! Her hemoglobin was 8.5 which is a bit low but they don’t give a blood transfusion until it’s down to 8. They also did another repeat x-ray to check to see if her lungs are retaining fluid. It was inconclusive though as the Gor-Tex they repaired her lung with made it hard to see.  

They seem to think the fever is to be expected after major surgery and also before surgery because the tumor was irritating the lungs. That would explain the persistent fever she’s had since she arrived in the hospital. She does seem to be cooler today, though it’s hard to know if she has a fever or not as she’s on round the clock meds. The true test will be to see if she wakes up drenched in sweat in the night again tonight.

Around mid-morning today Caitlin started to feel much better and has felt better most of the day. She’s still in a lot of pain but it’s much more manageable! 😀 A friend bought us Chinese food for lunch and the nurse said Caitlin could briefly be free of all her wires and her IV, so she WALKED all the way to the cafeteria with only her chest drain in tow. That might not sound like much but it’s a really long way and she walked there AND back! She was pretty sore by the time we got back to her room but what an accomplishment! 👏🏽👏🏽👏🏽🥳 We stayed in the cafeteria for about 1/2 an hour and it was so so good to see her out of her hospital room! 

Yesterday I forgot to say that other friends bought us Indian food for lunch. It was a blessing to see them and they and the awesome food were a bright spot in a very difficult day!😀

Barney has been blessed to stay with precious friends the last 3 nights and they’ve been amazing! Doing our laundry, feeding him yummy breakfasts and ferrying him back and forth to the hospital. Today he moved to the Ronald McDonald House so that he could be closer to the hospital. It’s only about a 5 minute drive and they have a shuttle that comes to the hospital in the morning and goes back to the home at night so that’s super convenient! Once Caitlin’s a little better, I plan to go there for a few hours one afternoon and try to catch up on some sleep.😀

Someone else emailed today to say that they’d noticed that they’d been hugging their son more than usual and generally lingering a bit around him and being a bit needy. 🥳 His son said, "I get it, but I need more space to breathe".😂 🤣😂 
All laughing aside, this sudden crisis in our family has made me so aware that we need to treasure every moment with our kids because things can change in a heartbeat!

We’ll, once again I’m exhausted (I’ve drifted off typing this at least 10 times) but am looking forward to a new and even better day tomorrow! 😀 We feel so uplifted and blessed by everyone’s love and support and we’re so blessed to  see how very many people care for our family! Thank you for your love and for coming along on this journey with us!💕

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Natalie Bruce

Natalie Bruce is the organizer of this fundraiser

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Daniel Mcdermott

Daniel Mcdermott

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Daniel Mcdermott

Daniel Mcdermott

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Natalie Bruce

Natalie Bruce

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