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Beveled Asterisk

JaxonBarr

JaxonBarr

Fundraising for

Jaxon Barr

Fundraising forJaxon Barr|
Other
Shanna Proffer

Shanna Proffer

Cape Girardeau, MO

$6,700of $10,000 goal
53
Donors
27
Comments
24Share Arrow
Shares
Other
Donation protected
👍 0% fee

Yesterday, my nephew, Jaxon, turned six years old. A few years ago, he was diagnosed with autism, and one of the biggest challenges has been his ability to eat. At six years old, Jaxon has never eaten solid food. He only consumes yogurt and yogurt smoothies. To ensure he gets enough calories and maintains his weight, my brother and sister in law mix toddler formula and heavy whipping cream into his yogurt. Unfortunately, this has affected his digestive system, causing him to throw up frequently. Throwing up has become so normal for him that he sometimes doesn't even tell them; he just uses a bowl in his room and goes back to playing, and then they start the feeding process all over again. You can imagine how stressful this can be at times.

Jaxon has been in feeding, occupational, and speech therapy for the last four years, going four days a week. Anytime they go on family outings, we carry a cooler with his yogurt, and he packs yogurt for school as well. They’ve heard all sorts of advice: "He’ll eat when he's hungry," "He'll grow out of it," or "Have you tried this?" Yes, they have, and no, it doesn't work.

Today, Jenny and Jaxon are driving to Florida for an intensive feeding therapy that will last eight weeks. Jaxon will attend therapy from 8 AM to 4 PM each day, and we are all hopeful and believing that after this, he will have the skills and ability to finally eat solid food. We look forward to Jaxon being able to enjoy the little things, like birthday cake, snacks with his classmates during holiday parties, or treats with his tee ball team after games and just thriving in general. This is a big change for my brother and his family, with Jenny being away from home and living out of a hotel for the first time, and Jonathan being the one at home with our two oldest. Insurance does not cover this intensive therapy not to mention hotel costs, food and gas etc. Any amount is appreciated and if you can’t give, you can pray ❤️

Fundraiser Updates (5)

March 02, 2025
Shanna Proffer
Shanna Proffer

Jaxon graduated from the Pediatric Feeding Institute of South Florida yesterday! 7 weeks of intensive feeding therapy with daily OT sessions. This facility is top notch. The best in the country. Kids come from all across the country and also from out of the country to attend this program. For years we had been trying everything locally available to us to help him to eat solid foods. We didn’t know what else to do. We researched and found this institute and knew he had to go. Our insurance denied his pediatrician’s referral 4 times, but we knew we would do anything to help him to eat. He gained the oral motor planning/skills to be successful, and is currently able to eat anything and everything! He gained weight and found a desire for food! They made his last session so special with all things Bluey! And he also enjoyed his first cupcake! No words are adequate to thank you all for all of your prayers, support, and donations!

February 24, 2025
Shanna Proffer
Shanna Proffer

Jaxon has done so well that he will be graduating a week early- this coming Friday! 👏🏻🙌🏻🥳 I know Jonathan and Jenny are beyond thankful for all your support, whether it be donating to this spotfund*, praying or the encouraging texts and phone calls! That being said, this will be the last week to share and/or donate but please continue your prayers! Thank you everyone ❤️

 

February 22, 2025
Shanna Proffer
Shanna Proffer

Week 6 is done! Jaxon did good this week. Working on cutting down his chewing time on each bite. We are currently trying to beat 1 minute 25 seconds, that’s his quickest swallow after chewing for how long he is comfortable. He has some preferred foods/textures he can do quicker but not consistently. He threw up twice during sessions this week, so we are trying to determine if it’s just the sensitive gag reflex causing it or his GI issues. His huge accomplishment was eating a bowl of cereal with milk today! He is starting to talk more about wanting to go home and about how long eating school is. His current thrill is seeing how our amazing housekeeper Ana makes his bed! She is good to us on our long stay! Thank you all for your support of Jaxon and our family!

February 16, 2025
Shanna Proffer
Shanna Proffer

Week 5! We did so much this week. We lost our first tooth and found a place in Florida to get a haircut! He had some hard days of wanting to chew his way, and not wanting to do it how he’s being taught. His therapists are so good with him  and take as much time as he needs to get it done. He thinks he knows how to eat and that he’s done with eating school haha, but to be safe we have to make sure of how he is going to develop his swallow. He is chewing great with lateralization and grading, but started to move the food to the front of his mouth when he’s ready to swallow, resulting in gagging and some throwing up. They tried everything that they do for this and Jaxon did not respond to it, so their last course of action is to glove up and make him do it manually. And he doesn’t like it! But it’s for his safety. Thursday and Friday he started doing much better and didn’t need them to help him! Thank you all for your support!

February 08, 2025
Shanna Proffer
Shanna Proffer

From Jenny “Week 4 is done! This week was met with some resistance. He had some tears and yelling for momma, but he overcame his fears and had a great Friday. He weighed 40.0 pounds today, up 2.0 from the day we started! Thank you all for your support!”

If you haven’t yet shared Jaxon’s story, please do!

Family Quinteros

Family Quinteros

$100 • Recent donation

Anonymous

Anonymous

$1,000 • Top donation

Shanna Proffer

Shanna Proffer

$100 • First donation

Organizer

Shanna Proffer

Shanna Proffer is the organizer of this fundraiser

Beveled Asterisk

JaxonBarr

JaxonBarr
Shanna Proffer

Shanna Proffer

Cape Girardeau, MO

Fundraising for

Jaxon Barr

Fundraising forJaxon Barr|
Other
Donation protected
👍 0% fee

Yesterday, my nephew, Jaxon, turned six years old. A few years ago, he was diagnosed with autism, and one of the biggest challenges has been his ability to eat. At six years old, Jaxon has never eaten solid food. He only consumes yogurt and yogurt smoothies. To ensure he gets enough calories and maintains his weight, my brother and sister in law mix toddler formula and heavy whipping cream into his yogurt. Unfortunately, this has affected his digestive system, causing him to throw up frequently. Throwing up has become so normal for him that he sometimes doesn't even tell them; he just uses a bowl in his room and goes back to playing, and then they start the feeding process all over again. You can imagine how stressful this can be at times.

Jaxon has been in feeding, occupational, and speech therapy for the last four years, going four days a week. Anytime they go on family outings, we carry a cooler with his yogurt, and he packs yogurt for school as well. They’ve heard all sorts of advice: "He’ll eat when he's hungry," "He'll grow out of it," or "Have you tried this?" Yes, they have, and no, it doesn't work.

Today, Jenny and Jaxon are driving to Florida for an intensive feeding therapy that will last eight weeks. Jaxon will attend therapy from 8 AM to 4 PM each day, and we are all hopeful and believing that after this, he will have the skills and ability to finally eat solid food. We look forward to Jaxon being able to enjoy the little things, like birthday cake, snacks with his classmates during holiday parties, or treats with his tee ball team after games and just thriving in general. This is a big change for my brother and his family, with Jenny being away from home and living out of a hotel for the first time, and Jonathan being the one at home with our two oldest. Insurance does not cover this intensive therapy not to mention hotel costs, food and gas etc. Any amount is appreciated and if you can’t give, you can pray ❤️

Fundraiser Updates (5)

March 02, 2025
Shanna Proffer
Shanna Proffer

Jaxon graduated from the Pediatric Feeding Institute of South Florida yesterday! 7 weeks of intensive feeding therapy with daily OT sessions. This facility is top notch. The best in the country. Kids come from all across the country and also from out of the country to attend this program. For years we had been trying everything locally available to us to help him to eat solid foods. We didn’t know what else to do. We researched and found this institute and knew he had to go. Our insurance denied his pediatrician’s referral 4 times, but we knew we would do anything to help him to eat. He gained the oral motor planning/skills to be successful, and is currently able to eat anything and everything! He gained weight and found a desire for food! They made his last session so special with all things Bluey! And he also enjoyed his first cupcake! No words are adequate to thank you all for all of your prayers, support, and donations!

February 24, 2025
Shanna Proffer
Shanna Proffer

Jaxon has done so well that he will be graduating a week early- this coming Friday! 👏🏻🙌🏻🥳 I know Jonathan and Jenny are beyond thankful for all your support, whether it be donating to this spotfund*, praying or the encouraging texts and phone calls! That being said, this will be the last week to share and/or donate but please continue your prayers! Thank you everyone ❤️

 

February 22, 2025
Shanna Proffer
Shanna Proffer

Week 6 is done! Jaxon did good this week. Working on cutting down his chewing time on each bite. We are currently trying to beat 1 minute 25 seconds, that’s his quickest swallow after chewing for how long he is comfortable. He has some preferred foods/textures he can do quicker but not consistently. He threw up twice during sessions this week, so we are trying to determine if it’s just the sensitive gag reflex causing it or his GI issues. His huge accomplishment was eating a bowl of cereal with milk today! He is starting to talk more about wanting to go home and about how long eating school is. His current thrill is seeing how our amazing housekeeper Ana makes his bed! She is good to us on our long stay! Thank you all for your support of Jaxon and our family!

February 16, 2025
Shanna Proffer
Shanna Proffer

Week 5! We did so much this week. We lost our first tooth and found a place in Florida to get a haircut! He had some hard days of wanting to chew his way, and not wanting to do it how he’s being taught. His therapists are so good with him  and take as much time as he needs to get it done. He thinks he knows how to eat and that he’s done with eating school haha, but to be safe we have to make sure of how he is going to develop his swallow. He is chewing great with lateralization and grading, but started to move the food to the front of his mouth when he’s ready to swallow, resulting in gagging and some throwing up. They tried everything that they do for this and Jaxon did not respond to it, so their last course of action is to glove up and make him do it manually. And he doesn’t like it! But it’s for his safety. Thursday and Friday he started doing much better and didn’t need them to help him! Thank you all for your support!

February 08, 2025
Shanna Proffer
Shanna Proffer

From Jenny “Week 4 is done! This week was met with some resistance. He had some tears and yelling for momma, but he overcame his fears and had a great Friday. He weighed 40.0 pounds today, up 2.0 from the day we started! Thank you all for your support!”

If you haven’t yet shared Jaxon’s story, please do!

Organizer

Shanna Proffer

Shanna Proffer is the organizer of this fundraiser

$6,700of $10,000 goal
53Donors
27Comments
24Share ArrowShares
Family Quinteros

Family Quinteros

$100 • Recent donation

Anonymous

Anonymous

$1,000 • Top donation

Shanna Proffer

Shanna Proffer

$100 • First donation

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