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*RisingTogetherJanAndStevo

Beveled Asterisk
RisingTogetherJanAndStevo
RisingTogetherJanAndStevo

Fundraising for

Janet & Stephen Brinkhaus

Fundraising forJanet & Stephen Brinkhaus
Ellen Maxfield Nagel

Ellen Maxfield Nagel

Poncha Springs

$1,075of $20,000 goal
11
Donors
7
Comments
11Share Arrow
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Donation protected
👍 0% fee

This is a fundraiser for Janet and Stephen Brinkhaus whose lives changed forever on August 27th, 2022 when Jan was rushed to the hospital in Alamosa, CO by her sister Kate. Jan suffered a life-threatening intracranial hemorrhage and could no longer be Stephen’s 24/7 caregiver.

Jan arrived in CO Springs via helicopter for emergency brain surgery and was placed on life-support in the ICU where she remained for 3 weeks before being transferred to a neurological unit. She transitioned off the ventilator and feeding tubes but continues to battle pain due to bleeding that reached the dura space of her spinal cord and problems with breathing/speaking due to prolonged use of the ventilator.

On October 12th, Jan started acute rehab and was discharged on October 21st. Kate (Jan's sister) helped Janet transition to a family home. Jan receives round-the-clock care from Kate who is overseeing home health therapies, meds, pain management, breathing treatments, etc. Jan will most likely be in the Nagel's home (sister Ellen & brother-in-law, Gary) for at least 6 months. 

Stevo remained in the home he shared with Jan and is being cared for by a loving family friend who stepped up to care for Stephen at a moment's notice. We are deeply indebted to him for doing this. Thank you, Jim!

Janet's oldest son, Tristan, and his wife, Amanda, and their 4 kids are working round-the-clock to renovate a home in Broken Arrow, Oklahoma, so that Stephen can be permanently transitioned to their family home. They will assume the long-term responsibility of caring for him and getting him services in Oklahoma.

Many loving friends and family have brought comfort, love, prayers and support during this time, for which we have all been tremendously grateful. Thank you, dear friends, for the love poured out on our family and for the kindnesses you have shown to us all. Your generosity of heart and spirit has been uplifting and so encouraging!

During these past months, many have asked, "How can I help?"

Detailed below are some answers to that question:

  • Prayers for health, transition and re-location, and for courage, stamina, wisdom
  • Emails, letters, cards, notes of encouragement to Jan and to Stevo (he can text with iPhone users; Jan still doesn't have a phone after hers went missing at the hospital). This has been a difficult adjustment for Stephen and obviously for Jan. Loving friends reaching out to them means a great deal. Stroke and recovery is a long, often hidden, journey; it is made less arduous by loving support. 
  • Sending small gifts to encourage and brighten their new home spaces. For Jan: candles, flowers, scenic calendar/photographs. For Stephen: essential oils/infuser products, nature photography to put on his wall, battery-operated candles.
  • Financial support for on-going costs related to Janet’s and Stephen’s re-location and medical recovery and support.

Both Janet and Stephen have and will incur numerous uncovered costs during the next six months:

  • 24/7 caregiving for Stephen Aug 28-present: $5,000
  • Stephen's travel and related moving expenses to be transported to OK via car (hotels, food, gas - return trip for driver): $1,500
  • Modifications made to Tristan and Amanda's family home (their total cost has been over $30k at this point) - 30k
  • 3 months of housing costs for Stephen w/caregiver in Moffat $1,500
  • Jan's costs (food, utilities) at Nagel home for 6 months ($500/month):$3,000
  • Home modification (installation of railings, bars) at Nagel's $850
  • Durable medical equipment and OTC medical supplies for respiratory therapy and pain management: $500
  • 5 months of caregiving support for Jan (once she does not need round-the-clock help): estimated 20 hours/week @ $20/hr: $8000

If you are able to help regarding any of the above needs, we thank you from the bottom of our hearts. You all have been a rock of support for our family in this difficult time, and we are deeply grateful to both you and Our God Who is the giver of life! Jan is our Miracle Girl, and we are so glad she is rising!

 

Fundraiser Updates (2)

December 14, 2022
Ellen Maxfield Nagel
Ellen Maxfield Nagel

Hey, y’all - Jan collapsed twice last night with me and Kate and seemed to be having some sort of seizure or cognitive status change, as she was unresponsive for a short period of time. She was having a very hard time keeping her head up and her eyes open. This was a similar episode to what precipitated her last stay at the hospital. Thankfully, we managed to help her safely to the floor and get her oxygen on her. She did revive eventually and was able to get up to her bedroom with our help.

The neurologist has ordered an MRI this morning and made some medication changes. Jan and Kate are on their way to the Springs right now for the MRI of her brain and also her lumbar spine.  (Jan can only get MRIs in the Springs due to her use of a pacemaker. It’s a two hour drive both ways when weather is good. )

Results from her PET scan and this brain MRI should be coming soon, so hoping for further direction and possible diagnoses of thoracic mass (cancer or thymoma?) and also the possible myasthenia gravis diagnosis as well as spinal issues.

We got Jan qualified for Long Term Care Medicaid to get some extra benefits for this long term process of dealing with the brain injury, the neuromuscular diagnosis and the spinal issues. Larger questions about long-term living situation, etc. are still in process. Right now, it’s a day at a time. Kate (who is incidentally a ROCK STAR) has been down here for two months and hasn’t been able to go home to Fort Collins even once. Jan really needs 24/7 still, so we have a lot to figure out for the future.

I will try to keep you posted. Alison and Steve came down yesterday to visit which was a true blessing to Jan and to us. They are moving to Ohio soon and wanted to say goodbye.

Stephen is still in Moffat and comes to stay was us when Jim has appointments or errands to do in town. He’s here with us today.

We send our love ❤️ More when I have it to tell.

December 01, 2022
Ellen Maxfield Nagel
Ellen Maxfield Nagel

December 1, 2022

Journal Entry by Ellen Nagel — a minute ago

Hey, Everyone:

Jan has had a bit of a set back recently and is back in the hospital here in Salida. She collapsed at home a few nights ago and had to be taken by ambulance to HRRMC.  She is under evaluation and is having numerous tests done. Unfortunately the hospital she is at does not have the capability to do an MRI for someone with a pacemaker, so we are a bit in the dark about what's happening. We've talked about transferring to the Springs, but that's really not possible at this time for a number of reasons. She underwent a 2hr EEG yesterday which the neurologist found helpful, and we were also able to source some records for the neurologist to take a look at from her initial event in August. Unfortunately, she is having some swallowing issues again and is undergoing a swallow test today with the speech pathologist.

We are really asking for your prayers right now and your support. Jan's recovery will be a long haul, and Kate and I are doing our best here in the day-to-day, but there are a lot of questions about the future and how Jan's recovery will work long term.

I am heading to the hospital today while I have a caregiver with Gary, so I will try to get a pic or two. Stephen is still in Moffat with Jim, and we are not certain when he will be going to Oklahoma.

Lots of love to everyone, and thank you for the many gestures of kindness and generosity which have been sent our way. I have been asked about the fundraiser, so I am posting the link again:  http://spot.fund/2PwtWJsc

Laura Ruiz

Laura Ruiz

$200 • Recent donation

Elise Fair

Elise Fair

$250 • Top donation

Mike Marian

Mike Marian

$5 • First donation

Organizer

Ellen Maxfield Nagel

Ellen Maxfield Nagel is the organizer of this fundraiser

Beveled Asterisk
RisingTogetherJanAndStevo
RisingTogetherJanAndStevo
Ellen Maxfield Nagel

Ellen Maxfield Nagel

Poncha Springs

Fundraising for

Janet & Stephen Brinkhaus

Fundraising forJanet & Stephen Brinkhaus
Donation protected
👍 0% fee

This is a fundraiser for Janet and Stephen Brinkhaus whose lives changed forever on August 27th, 2022 when Jan was rushed to the hospital in Alamosa, CO by her sister Kate. Jan suffered a life-threatening intracranial hemorrhage and could no longer be Stephen’s 24/7 caregiver.

Jan arrived in CO Springs via helicopter for emergency brain surgery and was placed on life-support in the ICU where she remained for 3 weeks before being transferred to a neurological unit. She transitioned off the ventilator and feeding tubes but continues to battle pain due to bleeding that reached the dura space of her spinal cord and problems with breathing/speaking due to prolonged use of the ventilator.

On October 12th, Jan started acute rehab and was discharged on October 21st. Kate (Jan's sister) helped Janet transition to a family home. Jan receives round-the-clock care from Kate who is overseeing home health therapies, meds, pain management, breathing treatments, etc. Jan will most likely be in the Nagel's home (sister Ellen & brother-in-law, Gary) for at least 6 months. 

Stevo remained in the home he shared with Jan and is being cared for by a loving family friend who stepped up to care for Stephen at a moment's notice. We are deeply indebted to him for doing this. Thank you, Jim!

Janet's oldest son, Tristan, and his wife, Amanda, and their 4 kids are working round-the-clock to renovate a home in Broken Arrow, Oklahoma, so that Stephen can be permanently transitioned to their family home. They will assume the long-term responsibility of caring for him and getting him services in Oklahoma.

Many loving friends and family have brought comfort, love, prayers and support during this time, for which we have all been tremendously grateful. Thank you, dear friends, for the love poured out on our family and for the kindnesses you have shown to us all. Your generosity of heart and spirit has been uplifting and so encouraging!

During these past months, many have asked, "How can I help?"

Detailed below are some answers to that question:

  • Prayers for health, transition and re-location, and for courage, stamina, wisdom
  • Emails, letters, cards, notes of encouragement to Jan and to Stevo (he can text with iPhone users; Jan still doesn't have a phone after hers went missing at the hospital). This has been a difficult adjustment for Stephen and obviously for Jan. Loving friends reaching out to them means a great deal. Stroke and recovery is a long, often hidden, journey; it is made less arduous by loving support. 
  • Sending small gifts to encourage and brighten their new home spaces. For Jan: candles, flowers, scenic calendar/photographs. For Stephen: essential oils/infuser products, nature photography to put on his wall, battery-operated candles.
  • Financial support for on-going costs related to Janet’s and Stephen’s re-location and medical recovery and support.

Both Janet and Stephen have and will incur numerous uncovered costs during the next six months:

  • 24/7 caregiving for Stephen Aug 28-present: $5,000
  • Stephen's travel and related moving expenses to be transported to OK via car (hotels, food, gas - return trip for driver): $1,500
  • Modifications made to Tristan and Amanda's family home (their total cost has been over $30k at this point) - 30k
  • 3 months of housing costs for Stephen w/caregiver in Moffat $1,500
  • Jan's costs (food, utilities) at Nagel home for 6 months ($500/month):$3,000
  • Home modification (installation of railings, bars) at Nagel's $850
  • Durable medical equipment and OTC medical supplies for respiratory therapy and pain management: $500
  • 5 months of caregiving support for Jan (once she does not need round-the-clock help): estimated 20 hours/week @ $20/hr: $8000

If you are able to help regarding any of the above needs, we thank you from the bottom of our hearts. You all have been a rock of support for our family in this difficult time, and we are deeply grateful to both you and Our God Who is the giver of life! Jan is our Miracle Girl, and we are so glad she is rising!

 

Fundraiser Updates (2)

December 14, 2022
Ellen Maxfield Nagel
Ellen Maxfield Nagel

Hey, y’all - Jan collapsed twice last night with me and Kate and seemed to be having some sort of seizure or cognitive status change, as she was unresponsive for a short period of time. She was having a very hard time keeping her head up and her eyes open. This was a similar episode to what precipitated her last stay at the hospital. Thankfully, we managed to help her safely to the floor and get her oxygen on her. She did revive eventually and was able to get up to her bedroom with our help.

The neurologist has ordered an MRI this morning and made some medication changes. Jan and Kate are on their way to the Springs right now for the MRI of her brain and also her lumbar spine.  (Jan can only get MRIs in the Springs due to her use of a pacemaker. It’s a two hour drive both ways when weather is good. )

Results from her PET scan and this brain MRI should be coming soon, so hoping for further direction and possible diagnoses of thoracic mass (cancer or thymoma?) and also the possible myasthenia gravis diagnosis as well as spinal issues.

We got Jan qualified for Long Term Care Medicaid to get some extra benefits for this long term process of dealing with the brain injury, the neuromuscular diagnosis and the spinal issues. Larger questions about long-term living situation, etc. are still in process. Right now, it’s a day at a time. Kate (who is incidentally a ROCK STAR) has been down here for two months and hasn’t been able to go home to Fort Collins even once. Jan really needs 24/7 still, so we have a lot to figure out for the future.

I will try to keep you posted. Alison and Steve came down yesterday to visit which was a true blessing to Jan and to us. They are moving to Ohio soon and wanted to say goodbye.

Stephen is still in Moffat and comes to stay was us when Jim has appointments or errands to do in town. He’s here with us today.

We send our love ❤️ More when I have it to tell.

December 01, 2022
Ellen Maxfield Nagel
Ellen Maxfield Nagel

December 1, 2022

Journal Entry by Ellen Nagel — a minute ago

Hey, Everyone:

Jan has had a bit of a set back recently and is back in the hospital here in Salida. She collapsed at home a few nights ago and had to be taken by ambulance to HRRMC.  She is under evaluation and is having numerous tests done. Unfortunately the hospital she is at does not have the capability to do an MRI for someone with a pacemaker, so we are a bit in the dark about what's happening. We've talked about transferring to the Springs, but that's really not possible at this time for a number of reasons. She underwent a 2hr EEG yesterday which the neurologist found helpful, and we were also able to source some records for the neurologist to take a look at from her initial event in August. Unfortunately, she is having some swallowing issues again and is undergoing a swallow test today with the speech pathologist.

We are really asking for your prayers right now and your support. Jan's recovery will be a long haul, and Kate and I are doing our best here in the day-to-day, but there are a lot of questions about the future and how Jan's recovery will work long term.

I am heading to the hospital today while I have a caregiver with Gary, so I will try to get a pic or two. Stephen is still in Moffat with Jim, and we are not certain when he will be going to Oklahoma.

Lots of love to everyone, and thank you for the many gestures of kindness and generosity which have been sent our way. I have been asked about the fundraiser, so I am posting the link again:  http://spot.fund/2PwtWJsc

Organizer

Ellen Maxfield Nagel

Ellen Maxfield Nagel is the organizer of this fundraiser

$1,075of $20,000 goal
11Donors
7Comments
11Share ArrowShares
Laura Ruiz

Laura Ruiz

$200 • Recent donation

Elise Fair

Elise Fair

$250 • Top donation

Mike Marian

Mike Marian

$5 • First donation

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