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*ROSLungCancerCure

Beveled Asterisk
ROSLungCancerCure
ROSLungCancerCure

Fundraising for

ROS1 insiders

Fundraising forROS1 insiders
Clare Lewis

Clare Lewis

The Dalles, OR

$5,050of $5,000 goal
40
Donors
27
Comments
23Share Arrow
Shares
Donation protected
👍 0% fee

I fractured a rib while surfing in February of 2022. The x-rays indicated in addition to a rib fracture, a spot on my lungs.  Since the radioloogist nor my primary MD said anything,  I assumed it was just an artifact.  I asked my MD brother to look at the x-ray and he said wait until the follow-up films and see what they say then. The radiologist never contacted me with a report so all was forgotton until August of 22' when I noticed a lump in my armpit. I went to my PCP but she did not think it was anything, but I was not convinced. I pursued it with my GYN who did take it seriously and sent me for testing which ultimately led to a diagnosis of stage 4 lung cancer from a gene mutation. As a never smoker, former triathlete and  someone who works out daily (in addition never coughs) I could not believe it! I've always lived a healthy lifestyle so I was devastated. At least, I was fortunate enough to be referred to an MD in Portland who actually treats people (he has one patient) with this mutation (ROS-1) and not only that, but there is a lab that studies ROS-1 at his facility (one of two in the country). These wonderful people who do cancer research hope that one day there will be a cure for this and other genetic cancers. We are all exposed to enviromental toxins (in my case, quite possibly radon) that can turn on genes that are supposed to stay dormant and as such, we are at risk of developing cancer. My motivation for doing this pilgramage is to let others diagnosed with this horrible disease and their loved ones, know what is possible despite this disease, and to bring greater awareness to genetic cancers that are benefiting from research dollars. I plan to walk at least 280 miles on this pilgrimaqge and hope that you will sponsor me by contributing a dontation per mile that I walk, eg.  1 cent to $1.00 a mile or more. :-)  All money raised will go to fund ROS-1 reasearch which will help develop drugs to keep people alive and maybe one day an actual cure!

Fundraiser Updates (5)

August 23, 2024
Clare Lewis
Clare Lewis

Dr. Davare of the OSHU ROS1 lab receiving check from monies raised from pilgrimage and her research team. Me on crutches from 2 stress fractures in my foot sustained during my 300 mile jaunt😉

August 23, 2024
Clare Lewis
Clare Lewis

I wanted to let everyone know that I presented a check today to OHSU, ROS one Research lab. Total raised was $5550. Again thank you to all of my donors. I can’t thank you enough for all of your generosity💕

August 21, 2024
Clare Lewis
Clare Lewis

https://www.columbiagorgenews.com/news/invisible-odorless-and-likely-inside-your-home/article_fa1ba50c-5ede-11ef-ad14-473bde8944fc.html

August 17, 2024
Clare Lewis
Clare Lewis

Happy end of the summer to all of my generous donors! I am writing to let you know I am going to be closing my campaign soon as I will be bringing a check to OHSU’s ROS-1 research lab next week. With all of your help, I came very close to my goal of $5000. I am thrilled that so many people were willing to donate to this cause. 
in gratitude,  Clare

May 28, 2024
Clare Lewis
Clare Lewis

Home and back to the USA Today!

last day spent in Toulouse France

Clare Lewis
Tina & Brian Leahy
Cheryl Richardson
and others donated recently
Karen Kunz Debbie Zakerski

Karen Kunz Debbie Zakerski

$50 • Recent donation

In Memory Of Sandy Fischer

In Memory Of Sandy Fischer

$409 • Top donation

Andy And Scott

Andy And Scott

$400 • First donation

Organizer

Clare Lewis

Clare Lewis is the organizer of this fundraiser

Beveled Asterisk
ROSLungCancerCure
ROSLungCancerCure
Clare Lewis

Clare Lewis

The Dalles, OR

Fundraising for

ROS1 insiders

Fundraising forROS1 insiders
Donation protected
👍 0% fee

I fractured a rib while surfing in February of 2022. The x-rays indicated in addition to a rib fracture, a spot on my lungs.  Since the radioloogist nor my primary MD said anything,  I assumed it was just an artifact.  I asked my MD brother to look at the x-ray and he said wait until the follow-up films and see what they say then. The radiologist never contacted me with a report so all was forgotton until August of 22' when I noticed a lump in my armpit. I went to my PCP but she did not think it was anything, but I was not convinced. I pursued it with my GYN who did take it seriously and sent me for testing which ultimately led to a diagnosis of stage 4 lung cancer from a gene mutation. As a never smoker, former triathlete and  someone who works out daily (in addition never coughs) I could not believe it! I've always lived a healthy lifestyle so I was devastated. At least, I was fortunate enough to be referred to an MD in Portland who actually treats people (he has one patient) with this mutation (ROS-1) and not only that, but there is a lab that studies ROS-1 at his facility (one of two in the country). These wonderful people who do cancer research hope that one day there will be a cure for this and other genetic cancers. We are all exposed to enviromental toxins (in my case, quite possibly radon) that can turn on genes that are supposed to stay dormant and as such, we are at risk of developing cancer. My motivation for doing this pilgramage is to let others diagnosed with this horrible disease and their loved ones, know what is possible despite this disease, and to bring greater awareness to genetic cancers that are benefiting from research dollars. I plan to walk at least 280 miles on this pilgrimaqge and hope that you will sponsor me by contributing a dontation per mile that I walk, eg.  1 cent to $1.00 a mile or more. :-)  All money raised will go to fund ROS-1 reasearch which will help develop drugs to keep people alive and maybe one day an actual cure!

Fundraiser Updates (5)

August 23, 2024
Clare Lewis
Clare Lewis

Dr. Davare of the OSHU ROS1 lab receiving check from monies raised from pilgrimage and her research team. Me on crutches from 2 stress fractures in my foot sustained during my 300 mile jaunt😉

August 23, 2024
Clare Lewis
Clare Lewis

I wanted to let everyone know that I presented a check today to OHSU, ROS one Research lab. Total raised was $5550. Again thank you to all of my donors. I can’t thank you enough for all of your generosity💕

August 21, 2024
Clare Lewis
Clare Lewis

https://www.columbiagorgenews.com/news/invisible-odorless-and-likely-inside-your-home/article_fa1ba50c-5ede-11ef-ad14-473bde8944fc.html

August 17, 2024
Clare Lewis
Clare Lewis

Happy end of the summer to all of my generous donors! I am writing to let you know I am going to be closing my campaign soon as I will be bringing a check to OHSU’s ROS-1 research lab next week. With all of your help, I came very close to my goal of $5000. I am thrilled that so many people were willing to donate to this cause. 
in gratitude,  Clare

May 28, 2024
Clare Lewis
Clare Lewis

Home and back to the USA Today!

last day spent in Toulouse France

Organizer

Clare Lewis

Clare Lewis is the organizer of this fundraiser

$5,050of $5,000 goal
40Donors
27Comments
23Share ArrowShares
Clare Lewis
Tina & Brian Leahy
Cheryl Richardson
and others donated recently
Karen Kunz Debbie Zakerski

Karen Kunz Debbie Zakerski

$50 • Recent donation

In Memory Of Sandy Fischer

In Memory Of Sandy Fischer

$409 • Top donation

Andy And Scott

Andy And Scott

$400 • First donation

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