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RoadToRecoveryForJessiRae

RoadToRecoveryForJessiRae

Fundraising for

Jessi Rae Culbreth

Fundraising forJessi Rae Culbreth
Fallon Allen

Fallon Allen

Anchorage, AK

Bn Culbreth
is collaborating on this fundraiser
$8,770of $10,000 goal
42
Donors
21
Comments
14Share Arrow
Shares
Donation protected
πŸ‘ 0% fee
πŸ’œ Help Support Jessi Rae’s Healing Journey
The past week has been a blur. Our family is heartbroken, overwhelmed, and doing our best to stay strong. With Brandon and Nashara’s permission, I’ve created this GoFundMe to help ease some of the financial burdens they are facing so they can focus entirely on what matters most, being by Jessi's side.
Last week, my niece Jessi Rae was taken to urgent care for what we believed were simple seasonal allergies. Her eyes were swollen completely shut, but since allergies run in the family, we hoped it would pass with time. Instead, things escalated quickly. Urgent care immediately sent Jessi and her mom, Nashara, to the emergency room and from that moment, everything changed.
After multiple tests, Jessi was diagnosed with a rare and serious kidney condition called Nephrotic Syndrome.
Watching a child suffer like this — being in constant pain, not understanding what’s happening, and begging to just go home ......it's every parent’s worst nightmare. And worse yet we all feel helpless to not be able to stop it. No one should ever have to watch their child hurt like this and feel powerless.

πŸ’” What is Nephrotic Syndrome? Nephrotic Syndrome causes the kidneys to leak large amounts of protein into the urine, which leads to severe swelling throughout the body, extreme fatigue, rapid weight gain, and a vulnerable immune system. It is painful. It is relentless. And it requires immediate, ongoing treatment — including hospital stays, medications, and close monitoring.
Right now, Jessi is in so much pain. She’s exhausted, uncomfortable, and just wants to be home in her own bed but there is no telling how long it will take until she does actually get to go home. Her dad, Brandon, has left work and has been staying at the hospital to be by her side. Meanwhile, family members have stepped in to care for her siblings and support the household the best we can.
πŸ’› How You Can Help
No parent should have to choose between staying by their sick child’s side and going to work to keep the lights on. Your donation, no matter how big or small, will help:
  • Cover lost wages while Brandon stays home
  • Support hospital and treatment expenses
  • Bring some relief during an incredibly stressful and painful time
Right now, Brandon and Nashara need to focus on one thing only and that is helping Jessi heal. Your support can make that possible.
We are praying for answers. We are clinging to hope. And we are wrapping Jessi Rae in all the love we have.
Thank you for reading, donating, sharing, and holding this family in your heart.
We love you so much Jessi Rae. Keep fighting. We got your back, and you are not alone sweet girl.

Fundraiser Updates (2)

September 23, 2025
Bn Culbreth
Bn Culbreth

✨ Update on Jessi ✨

 

We’re so happy to share that as of yesterday, Jessi is officially in remission from nephrotic syndrome! πŸ’œ This means her kidneys are working normally again and the protein in her urine has cleared. It’s a huge milestone and we’re incredibly grateful.

At the same time, her doctor reminded us that with nephrotic syndrome, relapse is expected and fairly common. Most children will relapse — sometimes multiple times — especially within the first year after their initial diagnosis. Infections like colds or even small illnesses can trigger these relapses.  Pneumonia being the most serious.  

The encouraging part is that relapses are treatable and most children will respond well again to medication if they did the first time. Over time, most kids grow out of the condition completely, though the timeline is different for each child.

We’ll continue monitoring Jessi closely, keeping an eye on her urine protein, and following her care plan to catch any relapses early. For now, we’re celebrating this important step and feeling hopeful about the road ahead. πŸŽ‰ Thank you for all the love, support, and prayers for our girl — they mean the world. πŸ’•

 


—She said the thing she is the most excited about is that she can eat french fries again sometimes and that she doesn’t have to take yucky medicine every morning.  

Because of fluid retention she has had to completely cut salt down to the bare minimum which is so much harder than it seems.  Especially for a kid.  

 

July 08, 2025
Bn Culbreth
Bn Culbreth

 


We want to sincerely thank everyone who has reached out, prayed, sent love, or simply kept us in your thoughts. Your kindness and support have meant so much to us.

As many of you know, our sweet Jessi Rae has been facing a very tough battle with minimal change kidney disease and nephrotic syndrome. It’s been a frightening and emotional journey, but Jessi has shown extraordinary courage and strength throughout it all.

When she was first admitted, she was in tremendous pain, unable to walk, and had a very low heart rate. It took several days to receive a clear diagnosis. Due to severe swelling, she wasn’t even able to provide a urine sample at first. Doctors eventually placed a catheter, which was very painful for her — but from that, they confirmed she was losing a significant amount of protein in her urine, and her blood levels were severely low in protein.

She then underwent three days of albumin infusions, which helped her release 21 pounds of excess fluid. We were told this treatment had only a 50/50 chance of helping, so we feel incredibly fortunate that it worked so well for her. Jessi also received four IV steroid treatments each day for seven days, as her body wasn’t able to absorb oral medications due to her internal swelling.

Each morning began with blood draws and we would anxiously wait for lab results.  While her numbers are still slow to improve, they’ve stopped declining and are now trending in the right direction — a step forward.

Despite everything she has been through, Jessi Rae has faced each day with remarkable bravery. We are beyond proud of her strength and resilience.

Looking ahead, we will continue working closely with the nephrologist at Seattle Children’s Hospital. Jessi will remain on steroid treatments as we carefully monitor her fluid retention and protein levels. We have been told to expect 8-10 weeks before she could be in full remission.

Thank you again for your love, encouragement, and continued prayers. Please keep Jessi Rae in your hearts as she continues on her path to healing.

Gram And Aunt Dee Dee

Gram And Aunt Dee Dee

$1,000 β€’ Recent donation

Cathleen Dullinger

Cathleen Dullinger

$1,000 β€’ Top donation

Rachelle & Josh Sanderson

Rachelle & Josh Sanderson

$500 β€’ First donation

Organizer

Fallon Allen

Fallon Allen is the organizer of this fundraiser

Beneficiary
Bn Culbreth

Support Β Bn CulbrethΒ  by donating to this fundraiser

RoadToRecoveryForJessiRae
Fallon Allen

Fallon Allen

Anchorage, AK

Bn Culbreth
is collaborating on this fundraiser

Fundraising for

Jessi Rae Culbreth

Fundraising forJessi Rae Culbreth
Donation protected
πŸ‘ 0% fee
πŸ’œ Help Support Jessi Rae’s Healing Journey
The past week has been a blur. Our family is heartbroken, overwhelmed, and doing our best to stay strong. With Brandon and Nashara’s permission, I’ve created this GoFundMe to help ease some of the financial burdens they are facing so they can focus entirely on what matters most, being by Jessi's side.
Last week, my niece Jessi Rae was taken to urgent care for what we believed were simple seasonal allergies. Her eyes were swollen completely shut, but since allergies run in the family, we hoped it would pass with time. Instead, things escalated quickly. Urgent care immediately sent Jessi and her mom, Nashara, to the emergency room and from that moment, everything changed.
After multiple tests, Jessi was diagnosed with a rare and serious kidney condition called Nephrotic Syndrome.
Watching a child suffer like this — being in constant pain, not understanding what’s happening, and begging to just go home ......it's every parent’s worst nightmare. And worse yet we all feel helpless to not be able to stop it. No one should ever have to watch their child hurt like this and feel powerless.

πŸ’” What is Nephrotic Syndrome? Nephrotic Syndrome causes the kidneys to leak large amounts of protein into the urine, which leads to severe swelling throughout the body, extreme fatigue, rapid weight gain, and a vulnerable immune system. It is painful. It is relentless. And it requires immediate, ongoing treatment — including hospital stays, medications, and close monitoring.
Right now, Jessi is in so much pain. She’s exhausted, uncomfortable, and just wants to be home in her own bed but there is no telling how long it will take until she does actually get to go home. Her dad, Brandon, has left work and has been staying at the hospital to be by her side. Meanwhile, family members have stepped in to care for her siblings and support the household the best we can.
πŸ’› How You Can Help
No parent should have to choose between staying by their sick child’s side and going to work to keep the lights on. Your donation, no matter how big or small, will help:
  • Cover lost wages while Brandon stays home
  • Support hospital and treatment expenses
  • Bring some relief during an incredibly stressful and painful time
Right now, Brandon and Nashara need to focus on one thing only and that is helping Jessi heal. Your support can make that possible.
We are praying for answers. We are clinging to hope. And we are wrapping Jessi Rae in all the love we have.
Thank you for reading, donating, sharing, and holding this family in your heart.
We love you so much Jessi Rae. Keep fighting. We got your back, and you are not alone sweet girl.

Fundraiser Updates (2)

September 23, 2025
Bn Culbreth
Bn Culbreth

✨ Update on Jessi ✨

 

We’re so happy to share that as of yesterday, Jessi is officially in remission from nephrotic syndrome! πŸ’œ This means her kidneys are working normally again and the protein in her urine has cleared. It’s a huge milestone and we’re incredibly grateful.

At the same time, her doctor reminded us that with nephrotic syndrome, relapse is expected and fairly common. Most children will relapse — sometimes multiple times — especially within the first year after their initial diagnosis. Infections like colds or even small illnesses can trigger these relapses.  Pneumonia being the most serious.  

The encouraging part is that relapses are treatable and most children will respond well again to medication if they did the first time. Over time, most kids grow out of the condition completely, though the timeline is different for each child.

We’ll continue monitoring Jessi closely, keeping an eye on her urine protein, and following her care plan to catch any relapses early. For now, we’re celebrating this important step and feeling hopeful about the road ahead. πŸŽ‰ Thank you for all the love, support, and prayers for our girl — they mean the world. πŸ’•

 


—She said the thing she is the most excited about is that she can eat french fries again sometimes and that she doesn’t have to take yucky medicine every morning.  

Because of fluid retention she has had to completely cut salt down to the bare minimum which is so much harder than it seems.  Especially for a kid.  

 

July 08, 2025
Bn Culbreth
Bn Culbreth

 


We want to sincerely thank everyone who has reached out, prayed, sent love, or simply kept us in your thoughts. Your kindness and support have meant so much to us.

As many of you know, our sweet Jessi Rae has been facing a very tough battle with minimal change kidney disease and nephrotic syndrome. It’s been a frightening and emotional journey, but Jessi has shown extraordinary courage and strength throughout it all.

When she was first admitted, she was in tremendous pain, unable to walk, and had a very low heart rate. It took several days to receive a clear diagnosis. Due to severe swelling, she wasn’t even able to provide a urine sample at first. Doctors eventually placed a catheter, which was very painful for her — but from that, they confirmed she was losing a significant amount of protein in her urine, and her blood levels were severely low in protein.

She then underwent three days of albumin infusions, which helped her release 21 pounds of excess fluid. We were told this treatment had only a 50/50 chance of helping, so we feel incredibly fortunate that it worked so well for her. Jessi also received four IV steroid treatments each day for seven days, as her body wasn’t able to absorb oral medications due to her internal swelling.

Each morning began with blood draws and we would anxiously wait for lab results.  While her numbers are still slow to improve, they’ve stopped declining and are now trending in the right direction — a step forward.

Despite everything she has been through, Jessi Rae has faced each day with remarkable bravery. We are beyond proud of her strength and resilience.

Looking ahead, we will continue working closely with the nephrologist at Seattle Children’s Hospital. Jessi will remain on steroid treatments as we carefully monitor her fluid retention and protein levels. We have been told to expect 8-10 weeks before she could be in full remission.

Thank you again for your love, encouragement, and continued prayers. Please keep Jessi Rae in your hearts as she continues on her path to healing.

Organizer

Fallon Allen

Fallon Allen is the organizer of this fundraiser

Beneficiary
Bn Culbreth

Support Β Bn CulbrethΒ  by donating to this fundraiser

$8,770of $10,000 goal
42Donors
21Comments
14Share ArrowShares
Gram And Aunt Dee Dee

Gram And Aunt Dee Dee

$1,000 β€’ Recent donation

Cathleen Dullinger

Cathleen Dullinger

$1,000 β€’ Top donation

Rachelle & Josh Sanderson

Rachelle & Josh Sanderson

$500 β€’ First donation

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