From Denise:
This past month Philip liver has been slowly moving into a dangerous zone. Why? Doctors think it was caused by the medicine π they gave him to save his life. HE CAN'T LIVE WITHOUT HIS MEDICINE. If he decided to not take the meds, it would be like Russian roulette with the Wegener’s Granulomatosis. Do we take our chances with this medicine he needs every 6 months (the infusions)? Or do we take our chances with this illness?????
A month ago they tested his antibodies. There were none. MOVE ON TO TODAY....He just recently had his blood tested and THE ANTIBODIES ARE BACK! And they are HIGH!!!
NOT GOOD!!!!
I'm not sure exactly what to say or what to think. We aren't really in a great spot right now.
People ask how are we doing?
That's a loaded question. We are learning. We are learning to live with an illness that doesn't want to go away. We are learning to live with limitations and not feeling well. We are learning to live inside a difficult time of our lives. π
There are a few ways you can help.
I'll list them here.
1. Spotfund....
This illness isn't going away. There is no cure. He needs to see his team of doctors. They are estimating he needs to see one at least every other month. But we have had ONLY ONE WEEK SINCE NOVEMBER with no appointments. This week we have 4!!!! 4 appointments. π΅π«π΅π«π₯Ίπ©
What will we use SpotFund donations for?
Bills, groceries, daily essentials. We wouldn't also appreciate the $$ funds for gas to and from doctors. We also get hungry π¬. It would be nice to be able to feed Philip while I run him here and there.
2. Amazon Wish list
Another way to help us just get through day to day as a family. It also includes some medical alert aids to help keep Philip safe in case something happens
If you remember we also have 5 KIDSπ³!!! ππππππ
https://www.amazon.com/hz/wishlist/ls/35UOILA4EHA4F?ref_=wl_share
3. NineDiamondRanch.com
We also have a family business. It's a business that my children and I are taking over. We are stocked and ready to serve you!! π₯³πππ
We appreciate each and every one of you precious souls β€οΈ. You are dear friends and special ♥οΈ to my heart. We love you all!!!
Thank you for prayers and support.
Please continue to pray. We would greatly appreciate it.
Thank you!!
Love, Denise πππππ